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# Retina: A Cure in Sight for Blindness

## Sitemaps
[XML Sitemap](https://retinasa.org.za/sitemap_index.xml): Includes all crawlable and indexable pages.

## Posts
- [Dis-Chem Ride for Sight 2026](https://retinasa.org.za/dis-chem-ride-for-sight-2026/): Be part of something bigger than the ride. Join the Dis-Chem Ride for Sight on 15 February 2026 at Boksburg City Stadium and cycle to restore the gift of sight. With distances of 116km, 62km, and 10km, there’s a challenge for every rider. Backed by Dis-Chem Pharmacies, Biogen, Ensure Gold, and more. Entry from just R150 — sign up today and make every pedal count.
- [Driving with Low Vision in South Africa](https://retinasa.org.za/driving-with-low-vision-in-south-africa/): Living with progressive vision loss raises difficult questions about independence, especially when it comes to driving. For many people with retinal conditions and other degenerative sight-loss diagnoses, the prospect of giving up the car keys feels like a major loss of freedom. Here’s a practical overview of the rules, assistive options, and realistic alternatives in South Africa.
- [Matric Exams Are Coming, Your Childs Vision is Not the Limit of their Future](https://retinasa.org.za/matric-exams-are-coming-your-childs-vision-is-not-the-limit-of-their-future/): This is one of the most anxious times of the year for Grade 12 families. For parents of learners who are blind or partially sighted, the questions go further than marks:
- [Living Well with Sight Loss: Join Our Free Eight-Session Zoom Course](https://retinasa.org.za/living-well-with-sight-loss-join-our-free-eight-session-zoom-course/): Dear Members and Friends,
- [Retina South Africa Names Dalya Vosloo-Sacks 2026 Volunteer of the Year](https://retinasa.org.za/retina-south-africa-names-dalya-vosloo-sacks-2026-volunteer-of-the-year/): It is with great pleasure that Retina South Africa presents the 2026 Volunteer of the Year Award to Dalya Vosloo-Sacks, in recognition of her exceptional commitment, unwavering generosity and outstanding contribution to our organisation over the past five years.
- [URGENT – Press Release](https://retinasa.org.za/urgent-press-release-2/): FOR IMMEDIATE RELEASE
- [E-News August 2026](https://retinasa.org.za/e-news-august-2026/): Our August 2026 edition of ENews is packed with news, and if you haven't had a chance to read it in full yet, here's a quick look at what's inside.
- [KZN Members Meeting](https://retinasa.org.za/kzn-members-meeting/): Event Details
- [United In Vision 2026 Conference](https://retinasa.org.za/united-in-vision-2026-conference/): A joint congress of Retina International and Fighting Blindness USA.
- [Out of Sight – June 2026](https://retinasa.org.za/out-of-sight-june-2026/): The June 2026 edition of Out of Sight, the official Retina South Africa newsletter, brings together inspiring stories, important advocacy updates, and exciting opportunities to support individuals living with vision loss and retinal conditions.
- [We Are Hiring](https://retinasa.org.za/we-are-hiring/): Retina South Africa is seeking a full-time Planned Giving Officer to strengthen our fundraising income through donor management, regular giving programs, bequests, and legacy development. The role reports to the Fundraising and Marketing Subcommittee and can be performed fully remote from anywhere in South Africa, with the option to work from our Germiston office if preferred. We prefer candidates with five or more years of experience in South African nonprofit fundraising, excellent communication skills, and a relevant degree. Remote applicants will need reliable home internet access. Salary is market-related. If this sounds like you, apply by sending your CV and cover letter to headoffice@retinasa.org.za by Monday 3 August
- [Youth Month Blog – Landing Your First Job](https://retinasa.org.za/youth-month-blog-landing-your-first-job/): Looking for your first proper job or trying to switch things up? Your CV is important, but these days employers check way more than just that. They look at your LinkedIn, Facebook, Instagram; basically anything they can find with your name. Here's how to make sure everything works together and shows you as someone they'd actually want to hire.
Make your LinkedIn and CV tell the same story.
- [Youth Month Blog – Write a Cover Letter that opens Doors](https://retinasa.org.za/write-a-cover-letter-that-opens-doors/): As part of our Youth Month Blog Series, we are equipping young job seekers with the tools they need to stand out — and it starts with a great cover letter. Why Your Cover Letter Matters
When you’re applying for a job, your CV shows what you’ve done. Your cover letter shows who you are and why you’re the right fit.
- [Carine’s Camino Journey – Day 3 & 4](https://retinasa.org.za/carines-camino-journey-day-3-4/): Day 3 & 4 — El Acebo to Ponferrada (Rest Day) Leaving El Acebo on a soft muddy pathway — after getting caught in the rain walking to dinner the previous evening — made for a much easier descent to Riego de Ambrós and Molinaseca. After just 3km we reached a wonderful coffee stop: El Paraiso, a converted caravan serving vegan, natural, home-cooked food. The owner was super friendly, spoke English and French, and was exactly the kind of human you want to encounter before a long descent.
- [Carine’s Camino Journey – Day 1](https://retinasa.org.za/carines-camino-journey-2/): By Carine Fraser | Camino de Santiago 2025
- [Carine’s Camino Journey – Day 2](https://retinasa.org.za/carines-camino-journey/): Day 2 - Rabanal del Camino to El Acebo - By Carine | Camino de Santiago 2026
A tough second day, with a steep descent on loose shale — yet never taking away from the time to stop and smell the roses. The day began with a gentle climb through carpets of purple heath, with colours of yellow scattered about. Wonderful photo opportunities, and for me, a time to stop even if for a couple of minutes. Taking photos is a way of capturing the essence of a scene and looking back at the details of what I might have missed due to my vision loss whilst walking.
- [New Practical Guide: Making Inclusive Employment for Visually Impaired Talent a Reality](https://retinasa.org.za/new-practical-guide-making-inclusive-employment-for-visually-impaired-talent-a-reality/): A new Practical Employment Guide for Visually Impaired Inclusion, developed by the Hein Wagner Academy in partnership with ABSA, offers South African employers actionable steps to create inclusive workplaces. With visually impaired graduate unemployment at 97%, this guide provides practical strategies for inclusive hiring, reasonable accommodations, and effective onboarding—helping organisations unlock talent, improve innovation, and build more accessible, equitable workplaces.
- [Youth Month Blog – Tailoring Your CV](https://retinasa.org.za/tailoring-your-cv/): When you are job-seeking as a person with a disability or visual impairment, your CV is often the first (and sometimes only) impression an employer gets of you. Many people make the mistake of creating one single CV and sending it to every vacancy they see. This “spray and pray” approach might occasionally lead to an interview, but the chances are very low; especially when you are already facing extra barriers in the job market.
- [Out of Sight – June 2026](https://retinasa.org.za/out-of-sight-june-2026-2/): Our latest Out of Sight newsletter is now live, featuring inspiring stories, important updates, and meaningful ways to get involved.
This month, we highlight Carine Fraser’s incredible Camino journey – support her fundraising efforts by purchasing a personalised ribbon in honour of a loved one or with a message of encouragement.
- [Keynote Speaker AGM 2026](https://retinasa.org.za/keynote-speaker-agm-2026/): Picture of Prof John Marshall - Image source UCL website
- [Carine Fraser: Walking the Camino with Purpose](https://retinasa.org.za/carine-fraser-walking-the-camino-with-purpose/): Carine Fraser a member of Retina South Africa is taking on the final 258 km of the Camino—while living with vision loss—turning every step into hope for others.
Be part of the journey. For R100, dedicate a personalised ribbon in honour of someone special. Your ribbon will travel with Carine, carrying your message every step of the way.
Support, remember, inspire—and help fund vital work for people living with retinal conditions.
🎗 Personalised Ribbon: R100
- [Accessible Communications](https://retinasa.org.za/accessible-communications/): The Independent Communications Authority of South Africa, commonly known as ICASA, is the regulator responsible for the communications sector, including television, radio and mobile services. One of its key initiatives is the Code for Persons with Disabilities Regulations 2021, which was developed in close consultation with the disability sector, including Retina South Africa.
- [Out of Sight – May 2026](https://retinasa.org.za/out-of-sight-may-2026/): This month’s Out of Sight newsletter highlights upcoming Padel for Sight fundraising event, shares updates from a successful Cape Town Members’ Meeting and Retina SA’s participation at the OSSA Congress, and explores how AI is transforming accessibility for visually impaired professionals.
- [We’re Hiring](https://retinasa.org.za/were-hiring-driver-support-worker/): Retina South Africa is seeking a reliable and compassionate Driver Support Worker in Germiston. This role involves supporting visually impaired clients with transport and mobility, alongside general driving duties. Ideal for someone starting out or looking for meaningful, community-focused work. Apply by 13 May 2026.
- [Orientation and Mobility Training](https://retinasa.org.za/orientation-and-mobility-training/): Orientation and mobility training teaches people with vision loss how to move around safely and confidently on their own. Orientation means understanding where you are in space and figuring out how to get where you want to go. Mobility is the skill of actually moving safely through that space.
- [Artificial Intelligence](https://retinasa.org.za/artificial-intelligence/): Imagine receiving a 50-page report full of  tables and charts that your screen reader just can't navigate properly. A few years ago, that document might have stayed out of reach. Today, AI changes  everything.
- [Giving a Voice to Silent Health Issues](https://retinasa.org.za/giving-a-voice-to-silent-health-issues/): On World Voice Day, we highlight the importance of speaking up about silent health conditions like Diabetes and Diabetic Retinopathy. In a recent Pulse FM interview, Retina South Africa’s Social Worker, Lindiwe Maredi, raised awareness about diabetic retinopathy — a serious complication of diabetes that can cause irreversible vision loss if not detected early. Her message emphasises the importance of awareness, early screening, and eye health for people living with diabetes in South Africa.
- [Customer Service Support Specialist – Umsizi Reader App](https://retinasa.org.za/customer-service-support-specialist-umsizi-reader-app/): Are you passionate about technology, people, and improving access to information for blind and low-vision South Africans? We invite you to join our team.
- [E-News – April 2026](https://retinasa.org.za/e-news-april-2026/): Our April 2026 Retina SA E‑News highlights major progress in research, advocacy and community impact, including:
- [Gene Therapy – The Future](https://retinasa.org.za/gene-therapy-the-future/): Dr Jannis Paulus of the Wilmer Eye Institute (Johns Hopkins) shared the latest advances in stem cell research with Michelle Glazer from Foundation Fighting Blindness .  He discussed the use of Optical Coherence Tomography imaging and gold nanoparticles to track individual cells as they repair retinal damage.
- [World Optometry Day](https://retinasa.org.za/world-optometry-day/): The twenty-third of March marks World Optometry Day, a global reminder from optometrists everywhere not to wait for problems to arise before seeking care. For those living with retinal conditions such as Macular Degeneration, Retinitis Pigmentosa, or Diabetic Retinopathy, this day carries particular significance.
- [Padel for Sight](https://retinasa.org.za/padel-for-sight/): This unique charity event combines the fast-growing sport of padel with the power of giving back. Hosted in a friendly, energetic atmosphere, Padel for Sight invites players of all levels — from first-timers to seasoned competitors — to take part in matches filled with excitement and purpose.
- [Out of Sight – March 2026](https://retinasa.org.za/out-of-sight-march-2026/): This month’s Out of Sight newsletter highlights several meaningful milestones and upcoming initiatives within the Retina South Africa community. With World Optometry Day approaching, we recognise the vital role optometrists play in supporting people with low vision through early detection, ongoing care, and practical guidance.
- [Living with Stargardt’s Disease: Strength, Sport, and Community](https://retinasa.org.za/living-with-stargardts-disease-strength-sport-and-community/): Rare Disease Week is a time to recognise the resilience, courage, and lived realities of people navigating conditions that are often misunderstood and underfunded. Inherited Retinal Diseases (IRDs), including Stargardt’s Disease, are classified as rare conditions. For many families, a diagnosis brings uncertainty, limited treatment options, and the need to constantly adapt to progressive vision loss. Yet within our Retina South Africa community, rare does not mean alone — and it certainly does not mean without purpose.
- [Looking Forward -Progress in Treatments for Rare Retinal Diseases ](https://retinasa.org.za/looking-forward-progress-in-treatments-for-rare-retinal-diseases/): Exciting advances are bringing hope to individuals living with rare inherited retinal diseases (IRDs). Retina South Africa’s latest update highlights several breakthroughs now moving from research to real-world treatment potential:
- [URGENT – Press Release](https://retinasa.org.za/urgent-press-release/): Dis-Chem Ride for Sight Announces Route Adjustment in the Interest of Rider Safety Following Heavy Rains During the Last Few Months in Gauteng   Johannesburg, Gauteng – 6 February 2026 – The organisers of the Dis-Chem Ride for Sight, Retina South Africa’s flagship cycling fundraising event, which takes place on 15 February 2026 at the Boksburg City Stadium have confirmed a late adjustment to the long-distance route in response to severe weather-related road damage in Gauteng.
- [Out of Sight, Still Out of Time](https://retinasa.org.za/out-of-sight-still-out-of-time/): February is the shortest month of the year—just 28 days, or 29 in a leap year. For people living with rare retinal diseases, even that brief window of awareness is often not enough. Rare retinal conditions are frequently progressive, genetic, and life-altering. Many begin in childhood or adolescence and lead to severe vision loss or blindness. In South Africa, their impact is often intensified by socioeconomic factors such as poverty, limited access to specialist care, high UV exposure, and nutritional deficiencies.
- [Still Riding Strong at 81](https://retinasa.org.za/still-riding-strong-at-81/): At 81 years old, Brian Garvey is proof that passion has no age limit. His sporting journey has been a lifelong adventure — one that started on the road as a runner, where he completed an astounding 100 marathons, including 13 Comrades Marathons. When injury brought his running career to a close, Brian didn’t stop moving. Instead, he chose a new path: mountain biking and road cycling. And that path led him straight to the Dis-Chem Ride for Sight,
- [Press Release](https://retinasa.org.za/press-release-2/): Boksburg, South Africa — One of South Africa’s most welcoming cycling events returns on Sunday, 15 February 2026, as the 37th Dis-Chem Ride for Sight takes place at Boksburg City Stadium — a race uniquely organised and led by people who are visually impaired themselves. For nearly four decades, the Ride for Sight has stood apart in the local sporting calendar.
- [SEE THE WORLD YOUR WAY](https://retinasa.org.za/see-the-world-your-way/): I am 72 years old and my age did not deter me from charting a course for the high seas on a cruise ship which activity has featured prominently on my bucket list, I was determined to make my dream a reality.
- [E-News – December 2025](https://retinasa.org.za/e-news-december-2025/): The December 2025 edition of the E-News is packed with vital updates and inspiring content for the vision community. Meet the newly appointed Chair, Vice Chair, and CEO, and reflect on the legacy of Prof Raj Ramesar, whose groundbreaking genetic research shaped the field.
- [WHY ARE TREATEMENTS NOT YET AVAILABLE](https://retinasa.org.za/why-are-treatements-not-yet-available/): Why are treatments not yet available. To understand why, we need to understand the complex structure of the retina and the intricate biological processes that converts photons of light to a detailed visual image in the brain.
- [OPTOBIONICS](https://retinasa.org.za/optobionics/): This type of research bypasses the damaged photoreceptors and uses the intact neural cells instead. A light-sensitive protein is delivered to one of the neural layers - usually the ganglion cells.
- [WHAT ARE GENES!](https://retinasa.org.za/what-are-genes/): These are instructions to make thousands of different proteins that the cells in our bodies need to reproduce and remain healthy. Nearly all cells reproduce but retinal cells are one of the exceptions. We inherit one set of genes from each parent. These sets are called Chromosomes and are named 1 to 22. We also inherit a gender determining chromosome from each parent.
- [WHAT ARE CLINICAL TRIALS](https://retinasa.org.za/what-are-clinical-trials/): What are Clinical Trials - Clinical trials are extensive patient-based tests to see if promising treatments are effective and safe. Traditionally they have been in 3 phases starting with low doses, small numbers and patients with severe vision loss and a placebo group that receives a sham treatment. These are necessary but tedious, expensive and strictly controlled by drug registration bodies, the FDA in the USA and the EMA in Europe.
- [The Power of Nutrition for Better Vision](https://retinasa.org.za/the-power-of-nutrition-for-better-vision/): As 2025 comes to a close, we extend our sincere appreciation to Retina SA for their continued leadership in supporting, educating, and advocating for individuals and families living with retinal conditions across the country. It remains a privilege for Nurture Vision to contribute to this shared mission. With growing public interest in nutritional approaches to eye wellness, we are pleased to provide a detailed overview of our supplement range - all locally manufactured and formulated with targeted ingredients that support different aspects of visual function - Nurture Vision Team
- [How Retina South Africa Is Transforming Lives Through Para Sport](https://retinasa.org.za/how-retina-south-africa-is-transforming-lives-through-para-sport/): How Retina South Africa Is Transforming Lives Through Para Sport. Building confidence, connection, and health - one athlete at a time. When Retina South Africa launched its Para Sport Development Division, the goal was simple but powerful: help people facing retinal degenerative conditions stay active, connected, and hopeful.
- [The Critical Call: World Diabetes Day in South Africa](https://retinasa.org.za/the-critical-call/): South Africa is grappling with an escalating diabetes crisis. With an estimated 4.2 to 4.6 million adults living with diabetes, the country has one of the highest prevalence rates in sub-Saharan Africa. Alarmingly, as many as 45% of these individuals are undiagnosed, essentially living with a ticking clock of potential complications. 
The statistics are sobering:
- [Clinically Complete, Locally Available](https://retinasa.org.za/clinically-complete-locally-available/): In the fast-evolving landscape of eye care, protecting vision has become just as important as correcting it. With an ageing population, rising screen exposure, and increased awareness of age-related macular degeneration (AMD), the focus has shifted toward prevention, and rightly so.
- [Travel Survey](https://retinasa.org.za/travel-survey/): The Department of Transport has published its annual Travel Survey to assess the accessibility of public transport. Your feedback matters!
Even if you participated last year, they’d like to hear from you again.
Share your input
- [Cape Town in Focus](https://retinasa.org.za/cape-town-in-focus/): Recently, a small but passionate team—Manny Moodley, Claudette Medefindt, Linsay Engelbrecht, and I, Karen Denton—embarked on an unforgettable outreach journey in Cape Town, all with a shared purpose: to connect with and support those navigating the world of retinal visual impairment.
- [World Retina Week: 21–28 Sept | Eye Care Awareness Month: 21 Sep-18 Oct](https://retinasa.org.za/world-retina-week-21-28-sept-eye-care-awareness-month/): Many people affected by retinal vision loss avoid seeing an eye care professional on a regular basis. As many retinal conditions are untreatable people may ignore the complications that can arise for all of us. Having a retinal condition does not protect you from developing cataracts, high pressure within the eye , or macular oedema .   
- [National Wills Week 15-19 September 2025](https://retinasa.org.za/national-wills-week-15-19-september-2025/): Did you know that shockingly, more than 85% of South African pass away without a valid will? Why a Valid Will Matters  Failing to have a valid will can have devastating consequences for families and loved ones, including prolonged financial hardship while estates are wound up according to intestate succession laws. During a time already filled with grief, this can compound the trauma, leaving your wishes unfulfilled and your assets distributed in ways you never intended.
- [Out of Sight – September 2025](https://retinasa.org.za/out-of-sight-september-2025/): In this edition, we explore significant advancements in automated vehicles and their potential to enhance independence for individuals
with visual impairments. We are also proud to introduce the Umsizi Reader, a transformative tool enabling our members to access texts
in all of South Africa's official languages.
- [Autonomous Cars](https://retinasa.org.za/autonomous-cars/): As blind persons living in South Africa, the idea of autonomous vehicles (AVs) fills us with an overwhelming sense of hope and excitement. For far too long, we've navigated a world where simple tasks like getting to work or visiting friends feel like insurmountable challenges. But AVs—self-driving cars powered by sensors, AI, and machine learning—promise to change that.
- [Umsizi Reader](https://retinasa.org.za/umsizi-reader/): Imagine diving into your favourite book, a work memo, or even a restaurant menu, all in your home language, no matter your visual ability. Thanks to the Umsizi Reader app, designed by South African innovator, and Retina member with Stargardts, Ferdie Danzfuss, this is now a reality for visually impaired South Africans.
- [Children’s Eye Health Month in the US](https://retinasa.org.za/childrens-eye-health-month-in-the-us/): August marks Children’s Eye Health and Safety Month in the US—and it’s a timely prompt for us in South Africa to reflect on how we’re supporting young vision.
- [African Disability Protocol](https://retinasa.org.za/african-disability-protocol/): African Disability Protocol - A game-changer for people with disabilities across the continent, including those of us with visual impairments. For our Retina South Africa community, navigating a world that often overlooks visual impairment can feel like a constant battle.
- [National Student Financial Aid Scheme](https://retinasa.org.za/national-student-financial-aid-scheme/): The National Student Financial Aid Scheme, or NSFAS, supports South African students from low-income families to pursue higher education at public universities or TVET colleges. For parents of students with disabilities, including visual impairments, NSFAS offers tailored benefits to make education accessible.
- [Support Retina SA through Woolworths MyDiference Programme](https://retinasa.org.za/support-retina-sa-through-woolworths-mydiference-programme/): Woolworths has officially launched its new MyDifference loyalty programme, giving you even more power to make a difference — simply by doing your everyday shopping.
- [SWING FOR SIGHT 2025](https://retinasa.org.za/11832-2/): Meet Our First New Player Introducing Manie Blom - one of the new faces of Team Retina SA!
We’re thrilled to welcome him to Team Retina SA - A cure in sight at this year’s Swing For Sight!
Diagnosed with Stargardt’s at age 9, Manie is a Paralympian,
- [E-News – July 2025](https://retinasa.org.za/e-news-july-2025/): Our latest E-News is packed with important updates for the Retina South Africa community. We’re reminding members to join us for our Annual General Meeting on 19 July 2025, which will be held as a hybrid event. Learn about the National Disability Parking Disc, a major step forward in improving access and mobility for visually impaired South Africans.
- [Accessibility Parking](https://retinasa.org.za/accessibility-parking/): A landmark amendment to the National Transport Act was signed, effective from December 3, 2024, introducing a standardized National Disability Parking Disc across South Africa.
- [WIN A LUXURY ZANZIBAR ESCAPE – Valued at R75,000!](https://retinasa.org.za/win-a-luxury-zanzibar-escape-valued-at-r75000/): Enter our exclusive raffle for a chance to win 7 nights in paradise at the boutique Michamvi Sunset Bay Resort – tucked away on Zanzibar’s serene southeast coast.
- [Out of Sight – June 2025](https://retinasa.org.za/out-of-sight-june-2025/): The June Edition of Out of Sight is Here! Dear friends and supporters, As the cooler days settle in, we’re excited to share the latest edition of Out of Sight, Retina South Africa’s official newsletter — packed with inspiring updates, exciting opportunities, and news you don’t want to miss! Annual General Meeting Save the Date: Our Annual General Meeting is happening on 19 July — an important moment to celebrate progress and shape the future together. More details coming soon!
- [Nurturing Vision Through Nutrition](https://retinasa.org.za/nurturing-vision-through-nutrition/): In today’s screen-heavy, fast-paced world, our eyes are under constant strain—from digital glare and artificial lighting to environmental stressors and aging. Nurture Vision was founded on the principle that proactive, science-backed nutritional support can make a meaningful difference in preserving and protecting sight. Their focus is twofold: safeguarding the long-term health of the retina, particularly the macula, and addressing the widespread issue of dry, irritated eyes affecting millions of South Africans daily.
- [Hope on the Horizon for Stargardt Disease](https://retinasa.org.za/hope-on-the-horizon-for-stargardt-disease/): Hope on the Horizon for Stargardt Disease: Participate in Pioneering Research and Access Genetic Testing at a Discount. At Retina South Africa, we believe that everyone affected by inherited retinal conditions deserves access to cutting-edge treatment and the chance to protect their vision. Today, there is exciting news for our community
- [Join the Conversation: Shape the Future of Assistive Technologies in Africa](https://retinasa.org.za/join-the-conversation-shape-the-future-of-assistive-technologies-in-africa/): Retina South Africa excited to share an important opportunity for you to make a difference in the lives of persons with disabilities across Africa and beyond. On June 12, 2025, the World Health Organization (WHO) will host stakeholder engagement sessions in Africa to discuss the proposed updates to the Priority Assistive Products List (APL). This is your chance to contribute to a global effort to ensure that assistive technologies
- [A Vision Beyond Sight](https://retinasa.org.za/a-vision-beyond-sight/): As a young adult, my world began to fade before I had fully seen it. The subtle yet persistent loss of vision became a constant in my life — an invisible shadow that followed me through my studies, through friendships, and through moments that were meant to define the person I was becoming. For over a decade, I sought answers. Specialist after specialist, doctor after doctor, yet clarity — both literal and medical — continued to elude me. It was only after years of uncertainty that I was finally diagnosed with Stargardt’s disease.
- [A New Dawn for Disability Rights in South Africa](https://retinasa.org.za/a-new-dawn-for-disability-rights-in-south-africa/): Exciting developments are underway that could transform the lives of persons with disabilities, including our blind and visually impaired community. The Protection and Promotion of Persons with Disabilities Bill, published by the South African Law Reform Commission (SALRC) on October 1, 2024, is a landmark draft legislation aimed at fulfilling South Africa’s commitments under the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). This Bill is a great development, and we encourage our members to engage with its development.
- [Finding My Purpose – by Manny Moodley](https://retinasa.org.za/finding-my-purpose-by-manny-moodley/): Life is full of challenges. Some are like gentle whispers, while others are like raging storms. But it's in these moments of adversity that we're given a choice: let the flames consume us or find purpose in the fire.
- [Seeing Beyond!](https://retinasa.org.za/seeing-beyond/): The National Council for the Blind’s Beyond Sight exhibition was a vibrant showcase of innovation, inclusion, and inspiration. Held in an atmosphere buzzing with energy and curiosity, the event brought together people from all walks of life to explore the latest in assistive technology and gain new insights into life with visual impairment.
From the moment attendees stepped through the doors, the exhibition offered an immersive and highly interactive experience.
- [International Guide Dog Day – 30 April 2025](https://retinasa.org.za/international-guide-dog-day-30-april-2025/): Today, 30 April, marks International Guide Dog Day, a day close to my heart. I want to share my journey with Dottie, my guide dog, who's been an incredible addition to my life for the past three years. Dottie, an immigrant from London
- [A New Chapter Begins at Retina South Africa](https://retinasa.org.za/a-new-chapter-begins-at-retina-south-africa/): We are pleased to announce the appointment of Manny Moodley (37) as the new Chief Executive Officer of Retina South Africa, effective from the 14th of April 2025.
- [Dis-Chem Ride for Sight 2025](https://retinasa.org.za/dis-chem-ride-for-sight-2025/): Thank you Dis-Chem Pharmacies for once again sponsoring the 2025 Ride for Sight.- a remarkable unbroken partnership of 17 years.  Under the Direction of Linsay Engelbrecht we saw a record post covid entry of 3138 entries with an amazing 46 Para cyclists taking part.
- [Stargardt Disease – At Last](https://retinasa.org.za/stargardt-disease-at-last/): The first patient has been dosed in the Phase 1/2 ASTRA study for Stargardt disease gene therapy SB-007.
SpliceBio from Barcelona, Spain, announced on March 13th the start of the trial which will assess SB-007, a dual adeno-associated viral (AAV) vector. The study is being conducted at the Casey Eye Institute in Oregon, USA. Paul Yang, MD, is principal investigator of the trial.
- [Celebrating World Optometry Day – 23 March 2025](https://retinasa.org.za/celebrating-world-optometry-day-23-march-2025/): Celebrating World Optometry Day: Eyes to the Future: Optometry Improving Global Wellness
Every year, March 23rd marks World Optometry Day, a global celebration dedicated to honouring the vital role of optometrists and ophthalmologists and raising awareness about the importance of eye health.
- [Press Release – 17 March 2025](https://retinasa.org.za/press-release-17-march-2025/): Retina South Africa commends the government for exempting low-cost smartphones from luxury tax but highlights the need for inclusivity. Deputy Chair Mariza Jurgens urges extending exemptions to high-end devices crucial for persons with visual impairments.
- [Breaking Barriers in Digital Accessibility](https://retinasa.org.za/11476-2/): In 1989, a groundbreaking tool emerged that would significantly enhance digital accessibility for individuals who are blind or have low vision. JAWS (Job Access With Speech), developed by Freedom Scientific, has since become a pivotal tool in the realm of assistive technology.
- [Rare Disease Day 2025](https://retinasa.org.za/rare-disease-day-2025/): Celebrating 44 Years of Visionary Impact
On this Rare Disease Day, Retina South Africa marks a remarkable 44-year journey of pioneering research, support, and advocacy in the rare retinal disease field. From our humble
- [Achromatopsia Overview](https://retinasa.org.za/achromatopsia-overview/): Achromatopsia Overview: Discover the causes, symptoms, and available resources for living with achromatopsia.
- [Fighting the Darkness](https://retinasa.org.za/fighting-the-darkness/): Leber Congenital Amaurosis (LCA) is more than a rare genetic disorder; it's a challenge faced from birth, leading to severe vision impairment or even blindness in early infancy. But within this challenge lies a story of resilience, hope, and the relentless pursuit of possibilities.
- [Refsum Disease (RD)](https://retinasa.org.za/refsum-disease-rd/): Refsum Disease (RD) is a rare disorder causing retinitis pigmentosa, anosmia, and polyneuropathy.
- [Understanding Usher Syndrome: A Glimpse of Hope](https://retinasa.org.za/understanding-usher-syndrome-a-glimpse-of-hope/): Usher syndrome is a rare genetic disorder that affects both hearing and vision, presenting unique challenges but also incredible resilience. As Rare Disease Day approaches, Retina South Africa highlights this condition, its types, diagnosis, and management. While there is no cure yet, ongoing research brings hope for better treatments. Together, we support and empower those affected, striving for a brighter future
- [Historic Participation of Visually Impaired Cyclists at Dis-Chem Ride for Sight 2025](https://retinasa.org.za/historic-participation-of-visually-impaired-cyclists-at-dis-chem-ride-for-sight-2025/): Retina South Africa is proud to host a landmark cycling event, the Dis-Chem Ride for Sight, this Sunday, featuring the largest ever participation of blind or visually impaired cyclists in South Africa.
- [Congratulations to the Visually Impaired Matric Class of 2024!!!](https://retinasa.org.za/congratulations-to-the-visually-impaired-matric-class-of-2024/): The South African National Council for the Blind (SANCB) in a press release congratulated the visually impaired class of 2024 for their marvellous matric results. Retina South Africa adds their voice to this congratulations
- [Ride for Sight Training Plan – 23 January 2025](https://retinasa.org.za/ride-for-sight-training-plan-23-january-2025/): Tuesday, January 23, 2025 - 50-Minute Training Session
- [Ride for Sight Training Plan – 21 January 2025](https://retinasa.org.za/ride-for-sight-training-plan-21-january-2025/): Tuesday, January 21, 2025, 50-Minute Training Session
- [Ride for Sight Training Plan – 18/19 January 2025](https://retinasa.org.za/ride-for-sight-training-plan-18-19-january-2025/): Stay safe and enjoy your ride! 
- [Ride for Sight Training Plan – 16 January 2025](https://retinasa.org.za/ride-for-sight-training-plan-16-january-2025/): Your Thursday 16 January 2025, 45–50-minute training session! 1. Warm Up: 10-15 minutes easy
2. Big Gear Low Cadence (Tempo): 12 minutes
3. Easy: 4 minutes
4. Tempo Intervals: 6 x 2 minutes @ Tempo with 2 minutes easy between each
5. Cool Down: 5-10 minutes easy
Remember, every pedal stroke brings you closer to your goal. Push your limits, stay focused, and ride with determination!
- [Ride for Sight Training Plan – 14 January 2025](https://retinasa.org.za/ride-for-sight-training-plan/): Are you ready to take your cycling skills to the next level? Join us as we gear up for the Ride for Sight with a series of power-packed training sessions designed to boost your performance and endurance! 💪
- [Lighting for Sight](https://retinasa.org.za/lighting-for-sight/): Sources: Macular Society: Macular Society Lighting Guide
- [International Day for Persons with Disabilities](https://retinasa.org.za/international-day-for-persons-with-disabilities/): The International Day of Persons with Disabilities, celebrated annually on December 3, was established by the United Nations General Assembly in 1992.
- [Age Related Macular Degneration [AMD]](https://retinasa.org.za/age-related-macular-degneration-amd/): The Age-Related Eye Disease Study (AREDS) — a landmark investigation conducted by the National Eye Institute (NEI) — determined that antioxidant supplementation can slow the progression of AMD.
- [Stellar RNA Trial for Stargardt Disease](https://retinasa.org.za/stellar-rna-trial-for-stargardt-disease/): The STELLAR clinical trial is a research study of a potential new treatment for people with ABCA4 retinopathy – the most common form of Stargardt disease.
- [Festive Season Raffle 2024!](https://retinasa.org.za/festive-season-raffle-2024/): Festive Season Raffle 2024! Join Retina SA in celebrating the festive season with our most exciting year-end raffle yet! Luxury Hamper
- [What is Charles Bonnet Syndrome?](https://retinasa.org.za/what-is-charles-bonnet-syndrome/): Charles Bonnet Syndrome (CBS) is a condition where individuals with significant vision loss experience complex visual hallucinations. These hallucinations are recognized as unreal by the person experiencing them. CBS can affect anyone with severe vision impairment, regardless of the cause of the vision loss. The condition was first described by Charles Bonnet in 1760, highlighting its long-recognized presence in the medical community.
- [Why do you need a Password Manager](https://retinasa.org.za/why-do-you-need-a-password-manager/): In today's digital age, securing online accounts with strong, unique passwords is crucial. For individuals with visual impairments, managing these passwords presents unique challenges, especially when navigating CAPTCHA verifications and two-factor authentication processes. Password managers emerge as a vital tool in this context, offering several benefits:
- [Ride Joburg for a Purpose](https://retinasa.org.za/ride-joburg-for-a-purpose/): The buzz is growing! Team Retina South Africa is expanding, and we’re gearing up for the Virgin Active 947 Ride Joburg on November 17, 2024. We’ve got something bold and exciting lined up - our debut red cycling kit is here to make a statement, and trust us, you won’t want to miss out! This is your chance to RIDE FOR A PURPOSE. Picture yourself standing out on race day, not just as a cyclist, but as part of a movement to change lives. And here’s the best part: our team hasn’t even seen the kit yet! It’s exclusive to our riders, and you’ll be the first to wear it with pride.
- [World Mental Health Day](https://retinasa.org.za/world-mental-health-day/): On World Mental Health Day, we honour the resilience of those with visual impairments and emphasize the importance of mental well-being. Navigating life with limited sight brings unique challenges but seeking help and practicing self-care are vital for mental health.

## Pages
- [Membership Form](https://retinasa.org.za/support-us/become-a-member/membership-form/): Name Surname Email Phone Province Select your provinceEastern CapeFree StateGautengKwaZulu-NatalLimpopoMpumalangaNorthern CapeNorth WestWestern Cape Fees – Annual fee: R240 I can payI request a waiver Become a Member
- [Shop](https://retinasa.org.za/shop/)
- [Meet The People](https://retinasa.org.za/our-story/meet-the-people/)
- [Trust Centre](https://retinasa.org.za/trust-centre/)
- [Ways to Give](https://retinasa.org.za/support-us/ways-to-give/): 2
- [Para Sport Development](https://retinasa.org.za/events/para-sport-development/)
- [Lifestyle Guide for Retinal Patients](https://retinasa.org.za/support-resources/living-with-vision-loss/lifestyle-guide-for-retinal-patients/)
- [Qualifying for Disability Benefits](https://retinasa.org.za/support-resources/living-with-vision-loss/qualifying-for-disability-benefits/)
- [Disability Benefits](https://retinasa.org.za/support-resources/living-with-vision-loss/disability-benefits/)
- [Guide for Health Providers](https://retinasa.org.za/support-resources/living-with-vision-loss/guide-for-health-providers/)
- [Guide for Educators](https://retinasa.org.za/support-resources/living-with-vision-loss/guide-for-educators/)
- [A Guide for Family and Friends](https://retinasa.org.za/support-resources/living-with-vision-loss/a-guide-for-family-and-friends/)
- [Guide for Newly Diagnosed](https://retinasa.org.za/support-resources/living-with-vision-loss/guide-for-newly-diagnosed/)
- [Genetic Testing & Counselling](https://retinasa.org.za/support-resources/living-with-vision-loss/genetic-testing-counselling/)
- [Fundraising](https://retinasa.org.za/events/fundraising/)
- [Learn & Connect](https://retinasa.org.za/support-resources/learn-connect/)
- [Out of Sight Newsletter](https://retinasa.org.za/out-of-sight-newsletter/): The Out of Sight newsletter is more than just a collection of articles—it’s a bridge connecting us all, a platform for sharing, learning, and growing together.
- [Get Involved](https://retinasa.org.za/support-us/get-involved/)
- [Shop to Support](https://retinasa.org.za/support-us/shop-to-support/)
- [Donate Now](https://retinasa.org.za/support-us/donate-now/)
- [Become a Member](https://retinasa.org.za/support-us/become-a-member/)
- [Accountability](https://retinasa.org.za/our-story/accountability/)
- [The Organisation](https://retinasa.org.za/our-story/the-organisation/)
- [Clinical Trials](https://retinasa.org.za/research/clinical-trials/)
- [Global Vision Loss Research](https://retinasa.org.za/research/global-vision-loss-research/)
- [Find Help & Services](https://retinasa.org.za/support-resources/find-help-services/)
- [Living with Vision Loss](https://retinasa.org.za/support-resources/living-with-vision-loss/)
- [Understanding Vision Health](https://retinasa.org.za/support-resources/understanding-vision-health/)
- [Contact Us](https://retinasa.org.za/contact-us/)
- [Support Us](https://retinasa.org.za/support-us/)
- [Our Story](https://retinasa.org.za/our-story/)
- [News](https://retinasa.org.za/news/)
- [Events](https://retinasa.org.za/events/)
- [Research](https://retinasa.org.za/research/)
- [Support & Resources](https://retinasa.org.za/support-resources/)
- [Home](https://retinasa.org.za/)

## Learn & Connect
- [EPISODE 36 – Did You Know Helen Keller visited South Africa?](https://retinasa.org.za/learn-connect/episode-36-did-you-know-helen-keller-visited-south-africa/): In this episode of Retinal Realities, host Karen Denton sits down with Bev Richardson from the Helen Keller Society to celebrate Helen Keller Month and Helen Keller Day on 27 June. We explore Helen Keller's extraordinary story, and the vital work the Helen Keller Society does today — providing free low vision assessments, assistive devices, and support groups to people living with vision loss across the Cape Peninsula
- [EPISODE 35 – Youth Month Feature](https://retinasa.org.za/learn-connect/episode-35-youth-month-feature/): Meet Karla Rousseau: a 24-year-old marketing graduate and law student living with Leber's Congenital Amaurosis, sharing her story this Youth Month.
- [EPISODE 34 – Empowering Accessibility through Innovation](https://retinasa.org.za/learn-connect/episode-34-empowering-accessibility-through-innovation/): In this episode of the Retinal Realities Podcast, we speak with Ferdie Danzfuss— software developer, Retina South Africa member, and creator of the Umsizi Reader App.
- [You, Your Eyes, Diabetes and Covid19](https://retinasa.org.za/learn-connect/you-your-eyes-diabetes-and-covid19/): The Diabetes/Covid Pandemics…
- [You don’t know, what you don’t know](https://retinasa.org.za/learn-connect/you-don-t-know-what-you-don-t-know/): It is often amazing what facts we overlook, especially with regard to our health. To compound this, there a huge amount of misinformation and disinformation on various media, and current ongoing research can make it difficult to further separate fact from fiction.
- [World Retina Day 2021 – Love Your Eyes – Love Your Life](https://retinasa.org.za/learn-connect/world-retina-day-2021-love-your-eyes-love-your-life/): In this two part webinar on World Retina Day 2021, Karen Denton Head of Advocacy and Claudette Medefindt - Head of Science ask 10 important question about Loving your Eyes.
- [Why is it so different for me…..](https://retinasa.org.za/learn-connect/why-is-it-so-different-for-me/): At Retina South Africca we are often asked why doctors prescribe different medications for various people who have the same condition e. g. Diabetes or Macular Degeneration.
- [Why don’t those meds work for me – Pharmacogenomics](https://retinasa.org.za/learn-connect/why-don-t-those-meds-work-for-me-pharmacogenomics/): Karen Denton Head of Advocacy and Education at Retina South Africa discusses why people react differently to different meds and why medications prescribed for one person should not be shared with other people.
- [What We Dont Know May Surprise Us](https://retinasa.org.za/learn-connect/what-we-dont-know-may-surprise-us/): We live in a world where misconceptions abound, false information is freely available, and there is much in our daily lives that we do unwittingly. Sometimes our actions are more beneficial than we realise, but sometimes there could be problems.
- [Tips For Youth Entering The Workplace](https://retinasa.org.za/learn-connect/tips-for-youth-entering-the-workplace/): We all know how challenging it is for our youth entering the workplace and these challenges are compounded when someone is visually impaired.
- [Smartphone Tips for the Visually Impaired](https://retinasa.org.za/learn-connect/smartphone-tips-for-the-visually-impaired/): In this talk Benjamin Pedro, Smart Digital Facilitator who works at the Cape Town Society for the Blind shares some tips on how to use your smart phone sucessfully with either no or little sighted assitance.
- [Retina SA AGM Proceedings 2021](https://retinasa.org.za/learn-connect/retina-sa-agm-proceedings-2021/): The Retina SA Annual General Meeting was held on the 14 August 2021 via Zoom.
- [Retina SA AGM 2021 – Guest Speaker – Jonathan Abro](https://retinasa.org.za/learn-connect/retina-sa-agm-2021-guest-speaker-jonathan-abro/): Jonathan Abro (UK) was the guest speaker at the Retina SA Annual General Meeting that was held on the 14 August 2021. In this video Jonathan Abro who has Retinitis Pigmentosa and who has been involved with computers since his early teenage years discusses his journey through sight loss and how technology has assisted him professionally and in everyday tasks.
- [mRNA The Future is Now…..](https://retinasa.org.za/learn-connect/mrna-the-future-is-now/): In this talk inspired by a TED talk that she heard by Melissa J Moore (Chief Scientific Officer at Moderna), Karen Denton (Head of Advocacy and Education at Retina SA) talks about the mRNA vaccine and so much more.
- [Living Your Best Life with RD](https://retinasa.org.za/learn-connect/living-your-best-life-with-rd/): Be motivated, educated and inspired by these speakers who are living well, with retinal conditions.
- [Living with the Ageing Eye – What you need to Know!](https://retinasa.org.za/learn-connect/living-with-the-ageing-eye-what-you-need-to-know/): In this webinar Karen Denton (Head of Advocacy and Education) speaks about the common causes of vision loss, Refractive Error, Cataracts (age related and diabetes), Glaucoma, Age Related Macular Degeneration, Retinitis Pigmentosa and Diabetic Retinopathy.
- [Charles Bonnet Syndrome](https://retinasa.org.za/learn-connect/charles-bonnet-syndrome/): In this webinar Karen Denton head of Advocacy and Education at Retina South Africa talks about Charles Bonnet Syndrome.  This condition is often under-recognised, under-reported and under diagnosed. Charles Bonnet Syndrome refers to the visual hallucinations caused by the brain's adjustment to significant vision loss and is not a sign of mental illness.
- [Being Visually Impaired in 2022 – Technology: Friend or Foe](https://retinasa.org.za/learn-connect/being-visually-impaired-in-2022-technology-friend-or-foe/): Jenny has been one of Retina SA members for many years. She is a creative communicator, independence coach, low vision awareness consultant and an innovator. Her experience of living with Stargardts Dystrophy, for more than 45 years, has given her a unique perspective on navigating life, relationships, physical environments, public transport and digital spaces independently.
- [Back to Basics – Special Edition – World Retina Week – Devices and Myopia](https://retinasa.org.za/learn-connect/back-to-basics-special-edition-world-retina-week-devices-and-myopia/): In today’s special edition of the “Back to Basics” webinar, celebrating World Retina Day, Karen will focus on the growing epidemic of myopia in children. We will discuss the various types of myopia, including progressive, high, and axial myopia, and explore why this condition is becoming a significant health hazard. Join us as we delve into the details of these terms and understand how myopia progressively worsens over time. Our education activities are supported by an unconditional educational grant from Roche Products (Pty) Ltd and Bayer South Africa.
- [Back to Basics – Episode 6 – Light and the Eye](https://retinasa.org.za/learn-connect/back-to-basics-episode-6-light-and-the-eye/): In our previous webinar, we spoke about the chambers and the fluids in the eye and we noted that none of the chambers in the eyes empty. They are all filled with different types of fluid. In this episode, we are going to look at light and more specifically how light interacts with the eye. Our education activities are supported by an unconditional educational grant from Roche Products (Pty) Ltd and Bayer South Africa. Social Media Medical Disclaimer The information on this platform is for informational purposes only and is not a substitute for professional medical advice. We are not medical doctors. Always consult your physician for any medical advice you need. The views expressed do not imply endorsement by Retina South Africa. Retina South Africa assumes no responsibility for the use of any information provided here. The opinions expressed are solely those of the speaker/author and do not necessarily reflect the views of our organization.
- [Back to Basics – Episode 5 – Chambers of the Eye](https://retinasa.org.za/learn-connect/back-to-basics-episode-5-chambers-of-the-eye/): In this episode of the Back to Basics Webinar - Chambers of the Eye, Karen delves into the different chambers and fluids of the eye, explaining the function of each. Our education activities are supported by an unconditional educational grant from Roche Products (Pty) Ltd and Bayer South Africa.
- [Back to Basics – Episode 4 – The Crystalline Lens](https://retinasa.org.za/learn-connect/back-to-basics-episode-4-the-crystalline-lens/): Welcome to Episode 4 of the Back to Basics Series – The Crystalline Lens. In this episode, Karen Denton, Head of Advocacy and Awareness at Retina South Africa, delves into the significance of the crystalline lens in the eye. This lens is crucial for vision as it focuses light onto the retina and ensures sharp, focused vision at varying distances. Our education activities are supported by an unconditional educational grant from Roche Products (Pty) Ltd and Bayer South Africa.
- [Back to Basics – Episode 3 – Eye Movements](https://retinasa.org.za/learn-connect/back-to-basics-episode-3-eye-movements/): In the third instalment of the “Back to Basics” series, Karen delves into the topic of Eye Movements, discussing the mechanics of how our eyes move and the factors that drive these movements.
- [Back to Basics – Episode 2 – Introduction to the Eye](https://retinasa.org.za/learn-connect/back-to-basics-episode-2-introduction-to-the-eye/): In the second installment of our “Back to Basics” webinar series, Karen Denton, who leads Advocacy, Education and Awareness at Retina South Africa, offers an enlightening introduction to the eye. She imparts intriguing facts about the eye, including the unique characteristic of the retina being the only living tissue in the body that doesn’t regenerate. Additionally, she reveals that the human eye achieves its full size between the ages of 8 and 13 years. Tune in to learn more about these fascinating insights and more. Don’t miss out on this educational journey into the world of vision! Our education activities are supported by an unconditional educational grant from Roche Products (Pty) Ltd and Bayer South Africa.
- [Back to Basics – Episode 1 – Facts on Vision and retinal conditions in small ‘bytes”](https://retinasa.org.za/learn-connect/back-to-basics-episode-1-facts-on-vision-and-retinal-conditions-in-small-bytes/): In the inaugural session of the ‘Back to Basics’ Webinar, Karen Denton, who leads Advocacy, Education, and Awareness at Retina South Africa, delivers bite-sized facts about vision and retinal conditions. Our education activities are supported by an unconditional educational grant from Roche Products (Pty) Ltd and Bayer South Africa.
- [Art, Artists and their Vision – Oct 2021](https://retinasa.org.za/learn-connect/art-artists-and-their-vision-oct-2021/): In this Webinar Karen Denton (Head of Advocacy and Education) at Retina SA talks about Art and Vision and in particular understanding visual defects with reference to classical artists and the effects that their vision loss had on their work throughout their lives.
- [EPISODE 32 – World Healthy Day – Healthy Living & Eye Health](https://retinasa.org.za/learn-connect/episode-32-world-healthy-day-healthy-living-eye-health/): In this World Health Day episode of Retinal Realities, Retina South Africa explores the link between healthy living, overall wellbeing and eye health. Host Karen, joined by Manny, Victoria and Lindiwe, discusses the impact of lifestyle diseases and shares practical tips — from regular eye tests to nutrition and UV protection — showing how everyday choices can help protect our vision and support a healthier future. This episode reminds us that every choice we make, every day, shapes our future health — including our sight.
- [EPISODE 33 – International Guide Dogs Day](https://retinasa.org.za/learn-connect/episode-33-international-guide-dogs-day/): In our latest Retinal Realities podcast episode (released for International Guide Dog Day), host Karen speaks to experienced traveller Mariza, who shares her real-life insights on flying both locally and internationally with her guide dog, Dottie. From booking flights and paperwork to airport security, long-haul journeys, and international regulations, this episode unpacks the realities — the challenges, the preparation, and the rewards of travelling with a guide dog. Practical tips Honest experiences Local & international travel advice Whether you’re a guide dog user, planning future travel, or wanting to understand accessible travel better, this episode is for you.
- [EPISODE 31 – World Optometry Day – How Optometrists Fit Into Eye Care](https://retinasa.org.za/learn-connect/episode-31-world-optometry-day-how-optometrists-fit-into-eye-care/): This episode features a discussion with Harry Rosen, CEO of the South African Optometric Association, focusing on how optometrists operate within South Africa’s eye‑care system. The conversation covers their scope of practice, regulated equipment standards, and how referral pathways work when more complex retinal conditions are suspected. It also explores optometry in public and private sectors, general screening processes, the use of ready‑made readers, community outreach, World Optometry Week, rising myopia in children, and the role of the SAOA.
- [EPISODE 30 – Defying Diabetes – Kaylin Otto](https://retinasa.org.za/learn-connect/episode-30-defying-diabetes-kaylin-otto/): November marked both Diabetes Awareness Month and Disability Awareness Month. To reflect on these important observances, Retinal Realities brings you an inspiring conversation with Kaylin Otto, who turned a life-changing diagnosis of Diabetic Retinopathy into a journey of resilience and purpose. Hear how Kaylin rebuilt her life, embraced new opportunities, and learned to thrive with vision loss. Her story is filled with hope, practical advice, and a powerful reminder: "Believe in yourself and never give up".
- [EPISODE 28 – Empowered to Educate – with Pieter Lindeque](https://retinasa.org.za/learn-connect/episode-28-empowered-to-educate-with-pieter-lindeque/): In this inspiring episode of Retinal Realities, we sit down with Peter Lindeque, a passionate educator and founder of an online tutoring platform designed for learners with Stargardt’s disease and other visual impairments. Diagnosed at age 10, Peter’s path was shaped by uncertainty, resilience, and the unwavering support of his family. His story is a testament to the power of education—not just as a tool for learning, but as a weapon for transformation. Peter shares how perseverance and purpose helped him overcome self-doubt and build a mission-driven platform rooted in patience, inclusivity, and lifelong learning. His philosophy as an educator reminds us that great teachers don’t just teach—they inspire growth, confidence, and possibility. Tune in to discover how Pieter turned personal challenges into a movement for empowerment, and how his work continues to light the way for learners navigating life with low vision.
- [EPISODE 29 – Redefining Independence – Caryl’s AMD Journey](https://retinasa.org.za/learn-connect/episode-29-redefining-independence-caryl-s-amd-journey/): In this powerful episdoe host Claudette Medefindt talks with Caryl Baum — retired lawyer, mother, and advocate living with Age-Related Macular Degeneration (AMD). Sponsored by Roche Products South Africa, this episode dives into the emotional and practical realities of vision loss. Caryl shares her journey, adaptive tools, and how she continues to thrive through scrapbooking, travel, and more. Whether you’re newly diagnosed or supporting a loved one, find hope, insight, and inspiration in Caryl’s story.
- [Back to Basics: Episode 7 – The Structure of the Retina](https://retinasa.org.za/learn-connect/back-to-basics-episode-7-the-structure-of-the-retina/): In this chapter, we explore the remarkable structure and function of the retina—presented in a simple, easy-to-understand way.
- [EPISODE 27 – Women’s Month Spotlight – Strength in Motion – with Kathleen (Kat) Flanagan](https://retinasa.org.za/learn-connect/episode-27-women-s-month-spotlight-strength-in-motion-with-kathleen-kat-flanagan/): In honour of Women’s Month in South Africa, today’s episode shines a light on a woman whose story embodies strength, spirit, and unstoppable determination. Meet Kathleen Flanagan — or as her friends call her, Kat. At 39, she’s a powerhouse of athletic achievement and quiet courage. Diagnosed with Retinitis Pigmentosa at the age of five, Kat has never been able to see in the dark, yet she’s always seen possibility. From climbing trees and playing tennis with neighbours to earning a President’s Award and completing her BTech in fashion design, Kat’s journey has been anything but ordinary. She holds a degree in accounting, works in tax, and has danced ballroom routines on stage. But her true passion? Sport. She’s conquered marathons, ultra trail runs, and triathlons — including her first full Ironman in March this year, with another on the horizon. This episode is a tribute to women like Kat — women who run, swim, lift, and rise. Women who redefine what’s possible. So let’s dive into her story and celebrate the power of women who dare to dream beyond sight.
- [EPISODE 26 – From Canvas to Counselling – Art, Loss, and Healing Through Psychology with Alexandra Makhlouf](https://retinasa.org.za/learn-connect/episode-26-from-canvas-to-counselling-art-loss-and-healing-through-psychology-with-alexandra-makhlouf/): Welcome to another powerful episode of Retinal Realities, where we explore vision loss, resilience, and the human spirit. In this heartfelt conversation, we meet Alexandra Makhlouf an artist and aspiring therapist based in Johannesburg. She has exhibited her work both locally and internationally. After experiencing significant vision loss in adulthood, Alexandra shifted her attention to psychology, completing an Honours degree with distinction at the University of the Witwatersrand. She has an interest in working at the intersection of mental health and disability, currently volunteering as a lay counsellor with the South African Depression and Anxiety Group (SADAG) and recently having launched an online mental health support group for people living with disabilities. Whether you live with vision loss or support someone who does, this episode is a tribute to vulnerability, perseverance, and the healing power of human connection.
- [EPISODE 25 – Finding Balance – Yoga, Vision Loss, and Inner Strength- with Claudette Medefindt](https://retinasa.org.za/learn-connect/episode-25-finding-balance-yoga-vision-loss-and-inner-strength-with-claudette-medefindt/): In this special Retinal Realities episode, we celebrate International Yoga Day with Claudette Medefindt — Retina South Africa’s Secretary and a dedicated yoga teacher. Claudette shares how yoga has helped her navigate life with vision loss, offering calm, strength, and balance. Join us for an inspiring conversation about resilience, mindfulness, and simple practices you can start today.
- [EPISODE 24 – Rare Retinal Diseases – with Claudette Medefindt](https://retinasa.org.za/learn-connect/episode-24-rare-retinal-diseases-with-claudette-medefindt/): This Rare Disease Day (28 Feb 2025), Retina South Africa highlights the challenges and breakthroughs in rare retinal diseases with expert Claudette Medefindt on our latest podcast episode! 🎙️ 🔍 Did you know? 👁️ Rare retinal diseases affect fewer than 1 in 10, 000 people. 🧬 Genetic testing is key to accurate diagnosis, with over 300 genes linked to these conditions. 💡 Exciting advancements like gene therapy & CRISPR bring hope for future treatments!
- [EPISODE 23 – Pedalling through challenges – with Joel Zeijlstra](https://retinasa.org.za/learn-connect/episode-23-pedalling-through-challenges-with-joel-zeijlstra/): In the latest episode of the Retinal Realities Podcast, Gavin and Karen sit down with Joel Zeijlstra, one of our incredible members who competed in the para category at the Dis-Chem Ride for Sight 2024. 🚴‍♂️✨ Joel opens up about the challenges he faced on his journey and what inspired him to take part in this amazing event. Don’t miss this inspiring conversation!
- [EPISODE 20 – National Women’s Month – A Woman of Substance – with Mariza Jurgens](https://retinasa.org.za/learn-connect/episode-20-national-women-s-month-a-woman-of-substance-with-mariza-jurgens/): Welcome to today’s episode of our podcast! Retina South Africa is led by a management committee of eight members, including five passionate and strong women dedicated to transforming the lives of countless South Africans affected by retinal disorders. Among these inspiring women is Mariza Jurgens, the Deputy Chair of Retina South Africa, who lives with Cone Rod Dystrophy. Her life and achievements are a testament to her unwavering spirit. On National Women’s Day, August 9th, we applauded Mariza Jurgens for her recent appointment to the World Health Organisation’s advisory group on assistive technology. Mariza has been instrumental in advocating for the South African Revenue Services to make online tax filing accessible to visually impaired individuals. Listen to as we delve deeper into Mariza’s journey, her advocacy work, and the incredible impact she continues to make in the lives of many.
- [EPISODE 21 – Navigating Blindness with Grace – with Leanne Hunt](https://retinasa.org.za/learn-connect/episode-21-navigating-blindness-with-grace-with-leanne-hunt/): “Blind people have dreams as big as sighted people, and if they have the determination and courage to pursue those dreams, why stop them? ” – Leanne Hunt Join us in this episode of the Retinal Realities Podcast as we chat with Leanne Hunt, the author of What Every Blind Person Needs You to Know. Leanne shares how her experiences with vision loss inspired her to write this insightful handbook, this handbook is designed to show families, friends and colleagues of the visually impaired how to offer support without being patronising. Leanne is living with Stargardt’s disease, a retinal condition that progressively leads to blindness. She has self-published several books, volunteered at various non-profit organizations, pursued a master’s degree, and written on a wide range of topics. Leanne’s accomplishments are a testament to her resilience and passion. Leanne’s book is available on Amazon at
- [EPISODE 22 – World Retina Day – Love Your Eyes – Kids – with Claudette, Victoria and Lindiwe](https://retinasa.org.za/learn-connect/episode-22-world-retina-day-love-your-eyes-kids-with-claudette-victoria-and-lindiwe/): In this World Retina Day special edition of the Retinal Realities Podcast, we are honoured to have Claudette, Victoria, and Lindiwe, our dedicated patient advocates. This year’s theme is “Love Your Eyes - Kids: Focusing on Children, ” and it’s a call to action we cannot ignore. At Retina South Africa, we’ve observed some concerning trends affecting children’s eye health that could have lasting impacts on their futures. With the explosion of screen time from devices like smartphones, tablets, and computers, the benefits of technology are clear, but so are the risks. Tune in as we explore these vital topics and offer actionable advice to safeguard our children’s vision. Your involvement can significantly impact the eye health of future generations. Don’t miss out! Thank you to Roche Products (Pty) Ltd for sponsoring this wonderful series of Retinal Realities podcasts. Podcast Disclaimer: Any information, either audio or visual, contained on this Podcast is for informational purposes only and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We are not medical doctors, and you should always contact your physician or other qualified health care professional for any medical advice you need.
- [EPISODE 18 – “Green” Dreams – Bowling beyond limits – with Nicholas Dedekind](https://retinasa.org.za/learn-connect/episode-18-green-dreams-bowling-beyond-limits-with-nicholas-dedekind/): On this Youth Day, Sonya, our Youth Team Leader, hosts Nicholas Dedekind on the Youth Edition of the Retinal Realities Podcast. Nicholas, a 24-year-old male living with Stargardt’s disease, recently graduated with honors in Economics (Cum Laude) from the University of Pretoria. Currently, he works as an intern economist in Johannesburg. Notably, Nicholas achieved a gold medal in the B3 Men’s singles event while representing the South African Invitational Bowls team at this year’s IBD World Championships. Join Retina South Africa for a day of fun and fundraising at our Bowls for Sight Day on the 28 July 2024. For more information about the event, visit our events page at
- [EPISODE 19 – Inner Vision – A Yoga Journey beyond sight – with Claudette Medefindt](https://retinasa.org.za/learn-connect/episode-19-inner-vision-a-yoga-journey-beyond-sight-with-claudette-medefindt/): Welcome to our special International Yoga Day podcast. Today, we are honoured to share a truly inspiring story of resilience, transformation, and inner strength. Yoga is not just a practice; it is a profound journey of self-discovery and healing. This journey is especially poignant for our guest, a remarkable yoga teacher who has faced the challenges of Retinitis Pigmentosa, a condition that has gradually taken her vision but never her spirit. Through the art and discipline of yoga and mindfulness, she has found a sanctuary of peace, a source of unwavering strength, and a pathway to acceptance and joy. Join us as we delve into her extraordinary journey, exploring how yoga has not only grounded her but also empowered her to embrace life with courage and positivity. Today, we celebrate the transformative power of yoga and the indomitable human spirit, exemplified by our guest Claudette Medefindt's incredible story.
- [EPISODE 17 – Hope through Trials – A Stargardt’s Patient’s Perspective – with Melanie Nel](https://retinasa.org.za/learn-connect/episode-17-hope-through-trials-a-stargardt-s-patient-s-perspective-with-melanie-nel/): In this powerful episode, we follow Melani Nel as she steps into the unknown—joining a groundbreaking clinical trial for Stargardt’s disease in South Africa. From the moment she received the call, her journey was filled with hope, doubt, and courage. Though the trial didn’t restore her vision, it offered something deeper: the chance to contribute to medical research and inspire future generations. Melani’s story reminds us that every trial is a step forward—and every participant, a pioneer.
- [EPISODE 15 – BREAKING THE BLIND BOUNDARIES – with Zaheeda Saloojee](https://retinasa.org.za/learn-connect/episode-15-breaking-the-blind-boundaries-with-zaheeda-saloojee/): Diagnosed with Retinitis Pigmentosa, Zaheeda Saloojee Jooma defied the odds by joining the Dis-Chem Ride for Sight just four weeks after taking up tandem cycling. With George De Goveia as her volunteer pilot, she faced fears, embraced trust, and proved that vision loss doesn’t limit courage. Her story is a powerful call to break barriers and support inclusive para sports—reminding us that resilience and community can light the way forward.
- [EPISODE 16 – THROUGH THE LOOKING GLASS – with Hazel Sacharowitz](https://retinasa.org.za/learn-connect/episode-16-through-the-looking-glass-with-hazel-sacharowitz/): Welcome to this episode of the podcast “Through the Looking Glass: Unveiling Low Vision with an Optometry Expert 17 – 23 March is World Optometry Week, with the 23rd being World Optometry Day, the focus is on recognising the contributions of optometrists. In today’s enlightening episode, we have the privilege of hosting Hazel Sacharowitz, a distinguished Optometrist from the Low Vision Care Centre. Hazel has over 35 years of experience in the field of low vision including lecturing and training of the Optometry students at the University of Johannesburg. She is well known and respected in her field and has presented at numerous local and international conferences. She is a Fellow of the American Academy of Optometry and remains passionate about low vision. Tune in, listen, and let’s explore the world of low vision together. Remember, you’re not alone—we’re here to support you!
- [EPISODE 1 – SHARING YOUR STORY – Claudette Medefindt – Head of Science](https://retinasa.org.za/learn-connect/episode-1-sharing-your-story-claudette-medefindt-head-of-science/): In this episode we talk to Claudette Medefindt, Head of Science at Retina South Africa and she shares a little more about why Retina SA decided to start the Retinal Realities Podcast.
- [EPISODE 2 – TRIUMPHANT TRIATHLETE – Linsay Engelbrecht](https://retinasa.org.za/learn-connect/episode-2-triumphant-triathlete-linsay-engelbrecht/): Our guest today on World Bicycle Day 3 June 2023 is Paratriathlete Linsay Engelbrecht. Linsay was diagnosed with Stargardts Disease - a genetic progressive eye disorder at the age of 23, but this hasn't stopped her from achieving her goals.
- [EPISODE 3 – WHERE THERE IS A WILL, THERE IS A WAVE – Michele McFarlane – Parasurfer](https://retinasa.org.za/learn-connect/episode-3-where-there-is-a-will-there-is-a-wave-michele-mcfarlane-parasurfer/): Our guest today on World Ocean Day 8 June 2023 is Michele Mc Farlane - Parasurfer. In 2005, Michele was diagnosed with 40 degrees vision due to the deteriorating eye disease Retinitis Pigmentosa. Two years ago, Michele did an adaptive surf clinic with the Roxy Davis Foundation and with her signature drive entered her first local competition the following year. In December 2022 Michele represented South Africa in the World Parasurfing Championships.
- [EPISODE 4 – OPEN THE LID AND CLIMB OUT – Alani Ferreira](https://retinasa.org.za/learn-connect/episode-4-open-the-lid-and-climb-out-alani-ferreira/): Happy Youth Day! This week on the Retinal Realities podcast, we have Alani Ferreira, a two-time Paralympic swimmer who has Stargardts. She is also a BCom graduate and works in Agriculture. She has a guide dog named Gatsby. She tells us how she overcame her disability and achieved her goals. She says "Don’t let your disability limit you”, people are going to try and put you into a box, but the box has a lid, open the lid and climb out.
- [EPISODE 5 – PAWS AT THE OFFICE – Mariza Jurgens and Dotty](https://retinasa.org.za/learn-connect/episode-5-paws-at-the-office-mariza-jurgens-and-dotty/): Today we celebrate Bring your Dog to Work Day with Mariza Jurgens and her guide dog Dotty. Mariza is a blind accessibility advocate who works to improve information access for the disabled in South Africa. She has Cone Rod Dystrophy, a visual impairment that affects her vision. Dotty helps her with tasks such as crossing the street, avoiding obstacles and finding her way around. Dotty is trained by Guide Dogs UK and responds to Mariza’s commands and alerts. Let’s appreciate these amazing animals and their owners!
- [EPISODE 6 – INTRO INTO YOUTH EDITION – Manny Moodley & Sonya Lee Mahabeer](https://retinasa.org.za/learn-connect/episode-6-intro-into-youth-edition-manny-moodley-sonya-lee-mahabeer/): Retinal Realities Podcast: Youth Edition is a podcast by Retina South Africa that aims to empower, create awareness and support the youth with retinal conditions. It features interviews with young people, their families and medical professionals who share their experiences and insights. We invite the youth to interact with us on our social media platforms and suggest topics that interest them. “Empowering youth today for a brighter tomorrow"
- [EPISODE 7 – IF YOU CAN DREAM IT, YOU CAN ACHIEVE IT!!! YOUTH EDITION – Charlie Dyasi](https://retinasa.org.za/learn-connect/episode-7-if-you-can-dream-it-you-can-achieve-it-youth-edition-charlie-dyasi/): “You are only disabled when you let yourself be disabled”, you are as abled as you are letting yourself and your mind be – Charlie Dyasi” Meet Charlie Dyasi and his guide dog Billy, who are our guests on the Youth Edition podcast today. Charlie is a blind sound engineer, voice over artist, radio presenter and podcast host. He shows us how to overcome disability with determination and hard work. Charlie and Billy prove that nothing is impossible.
- [EPISODE 8 – BEYOND THE FINISH LINE !!! YOUTH EDITION – Hilton Langenhoven](https://retinasa.org.za/learn-connect/episode-8-beyond-the-finish-line-youth-edition-hilton-langenhoven/): Retinal Realities, Youth Edition celebrates World Youth Skills Day (15 July 2023). On the podcast today Sonya and Samantha are joined by Hilton Langenhoven, who shares his phenomenal journey as a former paralympic athlete, world champion and commonwealth medalist. A story filled with courage, determination, and resilience about “chasing” your dreams and believing in leaps of faith. “Don’t cheat your workout, break-up with your comfort zone” - Hilton Langenhoven
- [EPISODE 9 – CHECKMATE – with Luzuko Ngwevwla](https://retinasa.org.za/learn-connect/episode-9-checkmate-with-luzuko-ngwevwla/): Chess is a game of strategy and skill that requires a great deal of concentration and focus. For a visually impaired person, playing chess can be a challenge, but it is not impossible. One of the most inspiring examples of a visually impaired person playing chess is that of Luzuko Ngwevwla from Cape Town. He learned to play chess in Worcester after going blind. Despite his disability, he enjoys playing in chess tournaments in person and online via Skype.
- [EPISODE 10 – WITH A LITTLE HELP FROM MY FRIENDS – with Grant Medefindt](https://retinasa.org.za/learn-connect/episode-10-with-a-little-help-from-my-friends-with-grant-medefindt/): Retinal Realities Podcast - Episode 10 - With a Little Help from my Friends Today is International Friendship Day and on the podcast our guest is Grant Medefindt. Grant is a successful designer and surfer from Cape Town. He has surfed in many exotic places, despite having Retinitis Pigmentosa, a condition that affects his vision. He is grateful to his surf buddies Brett, Brent and Guy, who help him catch the waves safely and enjoyably.
- [EPISODE 14 – LIVING THE SWEET LIFE – WORLD DIABETES DAY- 14 November 2023 – with Gavin van Wyk](https://retinasa.org.za/learn-connect/episode-14-living-the-sweet-life-world-diabetes-day-14-november-2023-with-gavin-van-wyk/): Today is World Diabetes Day and on the Retinal Realities Podcast, we have a special guest: Gavin van Wyk. Gavin is a SA Diabetes Advocate and a Retina SA Patient Advocate who has been living with Type 1 Diabetes for 35 years. He has experienced many challenges due to his diabetes, such as losing a lower limb and having low vision from Diabetic Retinopathy. Join Karen and Claudette as they talk to Gavin about his inspiring story of coping with Diabetes and Vision Loss on this podcast. To find out more about Diabetic Retinopathy, you can read this article:
- [EPISODE 12 – NATIONAL WILLS WEEK – with Sonya Lee Mahabeer](https://retinasa.org.za/learn-connect/episode-12-national-wills-week-with-sonya-lee-mahabeer/): On todays episode of the Retinal Realities Podcast we are joined by Sonya Lee Mahabeer who is an admitted attorney who is passionate about ethics, human rights, commercial law, including financial planning law, ESG and Legal Education. She is a member of Retina South Africa and is involved in the Youth and Governance Sub Committees. 11-15 September is National Wills Week and Sonya shares with us some insights which will aim to create awareness about drafting a will and testament. She will also discuss the objectives of a will and some legislative requirements.
- [EPISODE 13 – WORLD RETINA WEEEK- 24-30 September 2023 – with Claudette Medefindt & Sonya Lee Mahabeer](https://retinasa.org.za/learn-connect/episode-13-world-retina-weeek-24-30-september-2023-with-claudette-medefindt-sonya-lee-mahabeer/): World Retina Week is observed during the week of 24-30 September, it is observed in more than 40 countries to create awareness about retinal vision loss. On the podcast today we have two dedicated women who are active members of Retina South Africa, Claudette Medefindt who has a 40-year history and Sonya Lee Mahabeer who has just recently brought her enthusiasm and energy to the organisation. They each share their story on how they became involved in Retina South Africa and how Retina SA has helped them.
- [EPISODE 11 – WOMEN WITH VISION – with Dr Farah Moti](https://retinasa.org.za/learn-connect/episode-11-women-with-vision-with-dr-farah-moti/): Happy Women's Day! Today is a day to celebrate the amazing women in our lives and to recognize the incredible contributions they make to our world. Let's take a moment to appreciate the strong, resilient, and inspiring women who have made a difference in our lives. Here's to all the women who have made a positive impact on our lives and our world! On today's Retinal Realities podcast Karen and Claudette are joined by one of these amazing women, Dr Farah Moti. She is an Ophthalmic Surgeon with a distinction in her Masters dissertation, a mum of three, President of the Ophthalmological Society of South Africa.

## Fundraising
- [Zanzibar Holiday Raffle](https://retinasa.org.za/events/fundraising/zanzibar-holiday-raffle/): Picture yourself waking up to turquoise waters, swaying palm trees and unforgettable sunsets at the breathtaking Michamvi Sunset Bay Resort in Zanzibar.
- [Ride for a Purpose](https://retinasa.org.za/events/fundraising/ride-for-a-purpose/): Over the past 29 years, the Ride Joburg, proudly hosted by the vibrant City of Johannesburg, has played a pivotal role in showcasing the city’s dynamism and electric atmosphere, by giving cycling enthusiasts from around the world the chance to take to the M1 highway and own the streets of Joburg.
- [Swing for Sight](https://retinasa.org.za/events/fundraising/swing-for-sight/): Join Retina SA on 1 September 2026 at Royal Johannesburg Golf Club for a day of golf, connection and impact as we raise funds to support South Africans living with vision loss.
- [Ride for Sight](https://retinasa.org.za/events/fundraising/ride-for-sight/): For any results queries, email FinishTime – support@finishtime.co.za
- [My Difference](https://retinasa.org.za/events/fundraising/my-difference/): Woolworths has officially launched its new MyDifference loyalty programme, giving you even more power to make a difference — simply by doing your everyday shopping.