Children with inherited retinal disorders (IRD) can thrive in mainstream classrooms with the right understanding and practical support. Because much of school learning relies on visual information, thoughtful adjustments can significantly improve a learner’s confidence, safety and participation.

Every child’s vision is different. The key is understanding the learner’s functional vision and asking what works best for them.

A detailed educator guideline document is available for download below.

Education of Children with Inherited Retinal Disorders – Full Guidelines (PDF – 184KB)

How Vision Loss May Affect Learning

How Vision Loss May Affect Learning

Retinal conditions affect vision in different ways. Some children may struggle with detailed near work such as reading and writing. Others may have restricted side vision that affects movement around the classroom. Some experience glare sensitivity or slower adjustment between light and dark.

There is no single solution. Support should be individualised.

Simple Classroom Adjustments

Simple Classroom Adjustments

Small changes can have a big impact:

  • Keep aisles clear and remove trip hazards.
  • Improve contrast on stairs, glass doors, and teaching materials.
  • Read aloud what is written on the board.
  • Use bold, high-contrast print.
  • Seat the learner where lighting and visibility are best.
  • Allow extra time for reading, writing, and examinations.
  • Encourage early use of laptops or tablets where helpful.
  • Avoid glare from shiny surfaces or direct sunlight.

Supporting independence is essential. Adapt materials in advance where possible, and avoid over-assisting during lessons.

Health and Safety Notes

Health and Safety Notes

  • Certain supplements, including Vitamin A or beta-carotene, are not recommended for children with Stargardt Disease, Cone Rod Dystrophy, or juvenile macular dystrophies. Educators should be aware of this and liaise with families and relevant medical professionals where appropriate.
  • UV-protective sunglasses may be needed outdoors.
  • Be aware that vision may fluctuate.

Download the Full Educator Guide

Download the Full Educator Guide

The full guideline document includes detailed recommendations on:

  • Classroom setup and safety
  • Reading, writing, and examinations
  • Digital accessibility tools
  • Managing slow light-to-dark adaptation
  • Social inclusion and peer understanding
  • Career guidance and specialist support

Download the full PDF Educator Guide by clicking the link below.

Education of Children with Inherited Retinal Disorders – Full Guidelines (PDF – 184KB)

Need Support?

Need Support?

Retina South Africa can assist educators and families with guidance, publications, and referrals.

Helpline: 0860 595 959
Email: contact@retinasa.org.za

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