Hope, Support & Advocacy for People Living with Retinal Conditions
Retina South Africa is a patient-led non-profit organisation supporting people and families living with retinal diseases and vision loss.
We support South Africans with retinal conditions through education, advocacy, research, and community care, ensuring access to vital information and treatment. Our aim is a future with improved understanding and management of retinal diseases.
About us
We unite patients, families, and experts in retinal health.
Retina South Africa is a registered Non-Profit Organisation (NPO 003-184) and Public Benefit Organisation (PBO 930 001 585) operating in major centres nationwide. We unite individuals with retinal conditions, their families, clinicians, researchers, and advocates. Our mission is to support those affected by retinal diseases while raising awareness, promoting research, and improving access to future treatments.
Our Work and Impact
Retina South Africa enhances lives affected by retinal conditions through key initiatives.
Supporting Research
We support the Retinal Degeneration Research Project at the University of Cape Town, which works to identify genetic mutations affecting families across South Africa.
Genetic Testing & Clinical Trials
We help facilitate access to genetic testing so that patients may be eligible for clinical trials and emerging therapies.
Public Awareness
We raise awareness of retinal conditions caused by genetic factors, diabetes and age-related macular degeneration.
Patient Support
We provide education, guidance, referrals and support for individuals and families navigating vision loss.
Collaboration
We collaborate with local and international researchers, healthcare professionals and advocacy organisations to advance research and patient support.
Community & Para-Sport
We promote inclusive community initiatives, including participation in para-sport for people living with vision loss.
Research
Progress in Retinal Research Brings Hope
Global research into retinal conditions is advancing rapidly, bringing new hope to people living with vision loss. Advances in genetics, stem cell therapy, artificial vision and emerging treatments are creating new possibilities for people living with retinal conditions.
Retina South Africa works to ensure that patients are informed about these developments and are able to access opportunities to participate in research and future therapies.
Support Us
Three Ways To Make A Difference
Become a Member
Join our community to access trusted information, support services, events and updates for people living with retinal conditions and their families.
Donate & Give
Your donation helps fund research, patient support programmes and awareness initiatives that make a real difference.
Fundraise With Us
Take part in fundraising events and initiatives that help support vital research, patient programmes and genetic testing for families affected by retinal conditions.
Stay informed
Latest News & Events
Stay up to date with the latest research developments, community stories and events within the Retina South Africa network.
Frequently Asked Questions
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Retina South Africa is a patient-led non-profit organisation supporting individuals and families affected by retinal conditions and vision loss. We provide information, support, advocacy and help connect patients with research opportunities.
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Retinal conditions affect the retina, the light-sensitive layer at the back of the eye. These conditions can cause progressive vision loss and may include inherited retinal conditions, age-related macular degeneration and diabetic retinal conditions.
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Anyone affected by a retinal condition, as well as family members, caregivers and supporters, can join Retina South Africa.
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We provide education, patient support, referrals, information about research developments and opportunities to connect with a community of people living with retinal conditions.
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Yes. You can support our work by becoming a member, making a donation or participating in fundraising initiatives that help fund research, patient support and awareness programmes.
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You can contact our helpline on 0860 59 59 59 or start a WhatsApp chat for support, guidance and information.