Living with Vision Loss: Guides & Resources

Living with Vision Loss: Guides & Resources

At Retina South Africa, our goal is to ensure that people living with vision loss and retinal conditions in South Africa have access to appropriate information, support, and treatment pathways.

Through information-sharing, education, resources, and training, we aim to empower people with low vision to live confidently and participate confidently and independently in everyday life and society.

The resources below are designed for patients, educators, healthcare providers, family members, and friends:

Genetic Testing & Counselling

Genetic Testing & Counselling

Learn about inherited retinal conditions, genetic testing pathways, and the support available to individuals navigating a retinal diagnosis

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Guide for the Newly Diagnosed

Guide for the Newly Diagnosed

Practical guidance, emotional support, helpful next steps, and lifestyle adjustments for people living with a retinal condition or vision loss.

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Guide for Family & Friends

Guide for Family & Friends

Advice, practical support, and guidance for helping a loved one living with vision loss while encouraging confidence and independence.

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Guide for Educators 

Guide for Educators 

Practical guidance and classroom adjustments to help children with inherited retinal conditions learn confidently, safely, and independently.

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Guide for Healthcare Providers

Guide for Healthcare Providers

Information for healthcare professionals on supporting and referring patients living with inherited retinal conditions, including access to Retina South Africa support services and genetic testing pathways. 

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Disability Benefits 

Disability Benefits 

Information on disability benefits, tax relief, transport concessions, and practical support available to people living with low vision and retinal conditions in South Africa.

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Qualifying for Benefits 

Qualifying for Benefits 

Guidance on qualifying for the SASSA Disability Grant, including eligibility criteria, medical assessments, and support for people living with low vision in South Africa.

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Lifestyle Guide for Retinal Patients

Lifestyle Guide for Retinal Patients

Practical guidance on nutrition, eye health, supplements, lifestyle habits, and protecting long-term eye health for people living with retinal conditions and low vision.

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Need Support?

Need Support?

If you or someone you love has been diagnosed with a retinal condition, Retina South Africa is here to support you.

Helpline: 0860 59 59 59 (South Africa only)

WhatsApp Support Available: +27 82 074 7116

Email: contact@retinasa.org.za

Interested in getting involved?