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The Department of Transport has published its annual Travel Survey to assess the accessibility of public transport. Your feedback matters!
Even if you participated last year, they’d like to hear from you again. 
Share your input by completing the survey here: https://buff.ly/jL70inx
Let’s work together to make public transport more inclusive and accessible for everyone!

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Independent Contractor: Website Content Copywriter
📍 Location: Remote (within South Africa)
💼 Contract Type: Project-based (±30 hours)
Retina South Africa is committed to diversity and inclusion. Preference will be given to suitably qualified candidates who are persons with disabilities.
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Retina South Africa is seeking a skilled Website Content Copywriter to help us review, update, and optimise our website content. This is a short-term, flexible project ideal for an experienced freelancer passionate about clear communication, accessibility, and ethical content practices.
What You’ll Do
• Audit and update current website content for accuracy, clarity, and copyright compliance.
• Develop and refine copy that is user-friendly and aligned with our mission.
• Ensure copy is accessibility compliant (Web Content Accessibility Guidelines (WCAG).
• Collaborate with IT support for smooth implementation.
What We’re Looking For
• Proven experience in website content editing, copywriting.
• Skilled in using AI tools responsibly for content creation and optimisation.
• Strong attention to detail and excellent English writing skills.
• Ability to work independently and meet deadlines in a remote setting.
• Own computer and reliable internet connection.
• Knowledge of copyright law and POPIA compliance.
• Experience with non-profits or advocacy organisations.
• Familiarity with Google Analytics/Search Console and basic HTML.
• SEO & Metadata Optimisation
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Contract Details

• Duration: ±30 hours (flexible scheduling)
• Start Date: January (expected completion within 4–6 weeks)
• Rate: Will be discussed during the interview.
• Reporting: Project Lead
• Application: Send CV + 2 links to previous work + hourly rate indication to claudette@retinasa.org.za by 12 December 2025.

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I am 72 years old and my age did not deter me from charting a course for the high seas on a cruise ship which activity has featured prominently on my bucket list, I was determined to make my dream a reality.

As a visually impaired mature adventurer, I’ve discovered that with the right mind-set and planning, we are UNSTOPPABLE in our pursuit of new experiences and unforgettable memories.

 I have Age Related Macular Degeneration (AMD) and have lost my central vision but can still use my peripheral vision.
I’m mindful that everyone plans their holidays differently, and what works for one person may not work for another.

I wanted to plan and execute most of the logistics by myself, even though I know experts can do it, it has been a major accomplishment for me as I am computer illiterate. With that in mind, I’d like to share what I feel is important and based on my own experience, when planning a trip. I must admit that I did ask for some help as my daughter checked and verified all my arrangements. Use someone you can rely on to help you if you need to and even they may benefit from the lessons I learned.

I have recently returned from an incredible holiday in Europe. I was fortunate to have my daughter by my side, who kindly took care of me throughout our travels. Our journey began in Venice, where I had the opportunity to explore this beautiful city and immerse myself in its unique charm and atmosphere. Canals instead of streets, gondolas instead of cars and stunning architecture that’s been shaped by centuries of history and romance.

We embarked on a 10-day Mediterranean cruise from Venice, visiting various ports and marvelling at breathtaking landscapes along the way. The cruise came to an end in Barcelona, where I spent some time taking in the sights and sounds of this vibrant city. It was an unforgettable experience that left me feeling inspired and eager to plan my next adventure.

Here are my top travel tips mainly for those that are young at heart

1: Research, research, research! 

 Know exactly what holiday you want and what to expect. Research the destination, accommodations, airline, transportation options, and activities to ensure they’re accessible and suitable for you. Each to their own. Some are braver than others!

I phoned a number of different Travel agents who offered specials on cruises before I booked. I wanted to go to specific countries and checked with the operators to look at various cruise liners and their specials to ensure I got the best deal available. I managed to get through to the tour operator who sells the packages to agents and so had really good service.

I chose the ship that I felt gave me the holiday that I had imagined and suited my pocket.

2: Knowledge is key.

Check where to look online safely Research reputable websites, forums, and resources to find the correct information and deals for your trip. Be cautious of fraudulent sites and verify the authenticity of booking platforms and travel agencies. Even accommodations may be fictitious. Consider asking for recommendations from friends, family, or fellow travellers to ensure you’re using trusted sites.

When booking, I always ask for Bank account details to be verified.

3: Compare prices and book wisely.

Don’t rely solely on third-party booking sites. Sometimes, you can find better deals by checking the hotel’s official website. Compare prices, look for exclusive offers, and consider booking directly with the cruise liner, hotel or airline to save money or get additional perks.

I try to get accommodation that includes breakfast and free cancelation as well as allowing one to pay on arrival. When looking at booking platforms the accommodation is rated and comments are included from guests and they can give you information that may assist you with your choices.
When booking a cruise, make sure to review what’s included in the package. There may be discounts on cruises and flight discounts, excursion discounts, but drink packages, Wi-Fi and gratuities are sometimes not free and will be an extra charge. Also, be aware of the payment terms, including any penalties for cancellation. Read the fine print for hidden costs or changes to the itinerary the cruise operator may decide. Prices quoted may be in dollars and if you are not paying in full on booking, the price fluctuates.

 4: Plan for your specific needs 

 Consider the requirements for your trip, including checking up on suitable accommodations, arranging for assistance with transfers, and notifying your airline about any special needs. If you’re traveling with a guide dog, make sure you have the necessary documents well in advance.
My own experiences In Venice were walking on the cobbled streets and there was no assistance to carry luggage. I made sure our accommodation was not too far from the water taxi stop. However the accommodation did not have an elevator so my daughter and I had to carry our suitcases up a narrow staircase. I had to traverse the stairs at least twice a day, and the lighting was poor.That was scary. However, I chose a private BnB in a residential area that was quiet and tucked away from the crowds.

5: Packing and Travel essentials

It’s a good idea to start packing well in advance, making a list of all the essentials you need to bring along, especially medication. This helps ensure that you don’t forget anything important.

I do take certain pain relievers for headaches or tummy troubles, relying on the advice from my doctor. I also take extra doses of my chronic medications.

I chose to take a smaller suitcase and a backpack rather than a carry on-board suitcase. I kept my medication with me at all times. We used bags like a pouch, which were positioned in front, to keep our phones and purses safe.
Consider the time of year and weather forecast for your destination, and pack accordingly. Bring suitable clothing and shoes that will keep you comfortable and prepared for the conditions you’ll face. Ask for recommendations when choosing shoes. My sneakers gave me blisters and were obviously not for walking long distances.

With no raincoats in sight, we got absolutely drenched in a torrential thunderstorm while heading to the train station which departed from Venice to the port where our cruise ship was anchored. But that was just the dramatic start to our journey which lasted two hours, arriving at our destination thoroughly soaked and exhausted, but wiser for the experience

6: Get your travel documents and finances in order.

Check the expiry date on your passport and your credit cards.
There is a prepaid debit card that allows you to load Rand currency and then exchange them for foreign currencies at the real-time rate, making it a convenient and cost-effective way to spend overseas. With no foreign transaction fees, competitive exchange rates, and secure online management, it’s a great option for managing your spending while traveling abroad.
Ensure you secure the correct visa for your destination, applying well in advance to avoid any last-minute hiccups. I find it incredibly difficult to fill in the forms online and have to ask for help. However, I ensure that I collect all the necessary documents such as passport photos, bank statements, copies of ID and passport, confirmed flight and accommodation, and itinerary before I start applying. The visa website normally has all the information you need.
Read it carefully. We went to the wrong address as we assumed that the biometrics appointment was at an address where we had visited for the same visa earlier on in the year.

Double-check your travel arrangements, including flight and cruise details, to confirm you’ve got the timings right and won’t miss your departure. Check on your using your cell phone in a foreign country, such as the cost of roaming or using a sim card. Take a portable charger with you.
Verify that your transfer arrangements are in place.

Don’t forget to invest in comprehensive travel and medical insurance that suits your needs, giving you peace of mind in case the unexpected happens.  A back injury forced me to cancel my April cruise, and I was initially worried I would lose a significant amount of money due to the penalty clauses with the cruise line and airline. However, thanks to my medical and travel insurance, I was able to claim back most of my expenses. It was a huge weight off my shoulders and a valuable lesson in the benefits of travel insurance. If you pay your flight with your credit card you are covered for certain expenses. Discuss with your Bank.

Thank goodness I checked all my emails and found that the cruise ship changed the time of departure, which impacted our transfer to the port.

7: Take care of yourself
I’ve learned the importance of prioritising my health and well-being on long trips. By taking regular breaks, staying hydrated, and being prepared for any medical needs, I’ve been able to enjoy my travels without any major hiccups

8: Plan ahead for assistance.

 It’s really helpful to look at using assisted travel services, if possible, accessible rooms, and excursions that cater to your needs. Inform your airline, hotel, and tour operators for the cruise, about your visual impairment so they can make necessary arrangements. A word of caution. I could not get an accessible cabin and had to stay in a room with a step up to the bathroom and the handrail in the shower did not help me at all. We were forced to keep the light on in the bathroom. But we made it work for us and put a towel on the floor in the shower so that I had support.
I request wheelchair assistance as I cannot read signs and become disoriented in the airport. This has a huge plus as I avoid the queues going through passport control as we use another exit and don’t wait in line. I have help getting my luggage, and if I am catching another flight, I am wheeled to the departure gate so it’s not my fault if I miss my flight. I have personal experience of aircraft being delayed waiting for passengers in wheelchairs who have to be wheeled to departure gates from domestic terminals to international flights. Sydney Australia has this problem!! You must book a wheelchair in advance through the airline or airport company or there may not be one available.
I contact train stations and they also have assistance for disabled passengers. In a foreign country stations can be daunting because of language barriers. Having someone take you to the right platform and assist you onto the right train is so
satisfying. No stress.

9: Research accessible attractions  

Look into the accessibility features of attractions and activities you want to visit, such as audio descriptions, braille signage, or tactile exhibits.
Did you know that some museums in Europe offer free entry or reduced discounts for visually impaired people and their carers?  Research ahead of time to take advantage of these amazing offers.  I checked on the website of the Vatican museum and found there was a section dedicated to accessibility. I wrote to the staff at the Vatican and enclosed proof of my disability and a letter from my doctor and received two free tickets to the Vatican Museums for my daughter and me, together with an invitation to participate in a guided tour, which tour unfortunately I was not able to enjoy, due to time constraints.

 10: Help

Don’t hesitate to ask for help whether it’s asking for directions, assistance with luggage, or help with finding a good restaurant. If you don’t feel comfortable asking someone in a public area, go to the nearest store and engage with the staff.

 Even on the cruise you could ask for help. They have a dedicated crew that look after people with various disabilities. They were only visible when I requested assistance. Ask for them to do an orientation of the ship. I did not take up this service even though it was offered to me and upon reflection it would have helped find some attractions I did not know about. I find sometimes you must not expect assistance unless you ask for it.

I was surprised to find that having a white cane, did not necessarily change the way that people interacted with me in public as I persistently had to avoid bumping into someone walking towards me looking at their phone or looking around.
I wore a button which emphasised that I was visually impaired.

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Promotional graphic for Retina South Africa’s “Dis-Chem Ride for Sight” cycling event. Features bold green and blue text with the tagline “Cycling to restore the gift of sight.” Includes a stylized cyclist with bicycle wheels resembling eyes, and Retina South Africa’s logo in the top right corner

ENTER NOW

Major Sponsors: Dis-Chem Pharmacies, Dis- Chem Foundation, Biogen, Ensure Gold, DS -24, Cycle Lab.

Date: 15 February 2026
Venue: Boksburg City Stadium, Jubilee Road, Boksburg
GPS: S26.38153, E28.25222
Distances: 116km, 62km, 10km
Prices: R680, R500, R150.

Watch our social media for discounts.

FACEBOOK  
INSTAGRAM
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Enter Online HERE
Route Map HERE
Elevation HERE
Rules HERE

Online entries receive: Superior Dis-Chem Goodie Bag, free wash and lube plus R50 voucher from Cycle Lab, free entry to lucky draw prizes.

Official Seeding Event

116 km is seeding event for Ride Joburg 2026 and Cycle Tour 2027.

Ride Joburg Logo and Cape Town Cycle Tour Seeding Logo

Timing

Timing by Finish Time.

Finish Time Logo

Results at finishtime.co.za

Why Ride for Sight?  

All proceeds go directly to support South Africans losing vision to retinal degeneration and to support research. Proceeds go directly to Retina South Africa. NPO 003-184 and are NOT filtered through a commercial event organiser. 36 Years of safe, quality cycling.

Co Organisers: Springs Wheelers, Hamnet Emergency Communications, ASM Safety, Road Rangers.

Raffle Prizes – Double Your Impact

Orbea Road Bike value R65 000 sponsored by Cycle Lab – R100 per ticket; add to your basket.

Picture of the Orbea Bike with the words Sponsored by Cycle Lab above it

Pezulu Tree House Lodge mini break valued at R16 800, R50 per ticket; add to your basket.

Two giraffes stand on a grassy field in front of a treehouse lodge with a thatched roof and red-framed windows, elevated on stilts among lush green trees. A blue sky stretches above. In the top right corner, the logo for Pezulu Tree House Lodge features a stylized tree and five stars
All proceeds from raffle will be matched by Dis-Chem Foundation.

Registration at Cycle Lab Stores

Thursday 12 February – Pretoria  
Friday 13 February – Fourways
Saturday 14 February – Boksburg

116km and 62km late entry penalty at registration. No seeding.

Queries

Online entry queries: Cycle Tour:  0878207223.
For other queries:  Email:  info@entries.co.za

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November marked both Diabetes Awareness Month and Disability Awareness Month. To reflect on these important observances, Retinal Realities brings you an inspiring conversation with Kaylin Otto, who turned a life-changing diagnosis of Diabetic Retinopathy into a journey of resilience and purpose. 

💡 Hear how Kaylin rebuilt her life, embraced new opportunities, and learned to thrive with vision loss. Her story is filled with hope, practical advice, and a powerful reminder: *believe in yourself and never give up. 

👉 Listen now: https://www.youtube.com/watch?v=r1d3P8_SwMg 

🔔 Subscribe for more empowering stories that inform and inspire! 

Podcast Disclaimer: Any information, either audio or visual, contained on this Podcast is for informational purposes only and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. We are not medical doctors, and you should always contact your physician or other qualified health care professional for any medical advice you need. The views expressed in this podcast do not reflect the views of Retina South Africa or any of our sponsors.

 

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Our Latest Retina SA E-News is Here! 
Packed with updates, insights, and resources to keep you informed and empowered.

What’s Inside:
Leadership News – Meet our new Chair, Vice Chair & CEO
Tribute to Prof Raj Ramesar – Honoring decades of genetic research
Towards Treatment – Global progress in gene therapy, stem cells & artificial vision
Why Genetic Testing Matters – Its role in future treatments & family planning
Living Your Best Life – Tips for eye health, nutrition & tech use
Nurture Vision Spotlight – Supplements for macular health, dry eye relief & Omega-3 benefits
Get Involved – Update your records, join WhatsApp groups & access podcasts

Read the full November E-News now: E-News December 2025

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To understand why, we need to understand the complex structure of the retina and the intricate biological processes that converts photons of light to a detailed visual image in the brain.

The retina is one of the most metabolically active cells in the body, requiring huge amounts on nutrients and oxygen. This fragile, multi-layered, complex retinal structure needs perfect conditions to function and mutations, mistakes, in the genes [see more below] cause malfunction, accumulation of waste products, and cell death.

Light enters the eye through the cornea, the transparent layer at the front of the eye, where the focusing process begins. It then travels through the pupil and reaches the lens, which further sharpens the light and directs it onto the retina.

Inside the eye, the vitreous, a clear, gel-like substance, can contain tiny impurities that may interfere with the clarity of the image reaching the retina. Prescription glasses or contact lenses help fine-tune the focus, resulting in sharper vision.

Cross section picture of the eye

Cross Section of the Eye

Researchers have made great progress in trying to rectify genetic mistakes, clear waste product and renew damaged cells.

Global research to find treatments and cures for retinal vision loss is advancing rapidly. Areas such as stem cells, gene therapy, gene editing, optobionics, artificial retinas, and pharmaceutical interventions are all making steady progress. Many are in advanced clinical trials and registration is expected within a few years. The effect of lifestyle and supplementation on retinal health is also receiving serious attention.

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This type of research bypasses the damaged photoreceptors and uses the intact neural cells instead. A light-sensitive protein is delivered to one of the neural layers – usually the ganglion cells.

BIONIC SIGHT for RP

This is a very exciting development from Dr Sheila Nirenberg, who has spent 10 years decoding the retinal messaging system. Her latest clinical trial is testing her Optobionic molecule BSO1 without a coding device. This is a single intravitreal injection which improves the sensitivity of the ganglion cells.

OPTOBIONIC BSO1

ChronosFP is an enhanced, light-sensitive channel rhodopsin protein, a type of microbial opsin. It is delivered to the ganglion cells using an adeno-associated virus (AAV) vector via an intravitreal injection. Ganglion cells usually survive despite severe photoreceptor degeneration. The ganglion cells express the ChronosFP protein, embedding it into the cell membranes. The protein acts as a light-sensitive ion channel which allows the ganglion cells to respond to weak signals from the remaining photoreceptors. Participants have shown improvements in visual acuity, field of vision and are able to negotiate a maze, even in reduced light. This exciting intervention may be available in a few years. The original trial that includes an optical decoder will assist people with more severe vision loss. https://www.youtube.com/watch?v=0WQgixZjOW4

 

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These are instructions to make thousands of different proteins that the cells in our bodies need to reproduce and remain healthy. Nearly all cells reproduce but retinal cells are one of the exceptions. We inherit one set of genes from each parent. These sets are called Chromosomes and are named 1 to 22. We also inherit a gender determining chromosome from each parent.

Males inherit an X chromosome from their mother and a Y chromosome from their father. Females inherit an X chromosome from both parents. Humans have about 22 000 genes and mutations can occur in any of these genes. There are over 300 genes that have been linked to Inherited Retinal Degeneration and dozens more identified in AMD.

In IRD the mutation can be inherited in different ways. In recessive inheritance parents unknowingly carry a single copy of the mutated gene and may both pass this gene onto their child. In dominant inheritance a single parent, mother or father is affected by the condition and may pass the gene onto their children.

In X linked inheritance the mother is the carrier and may pass the gene onto the sons who will be affected, and their daughters who will again be carriers. This is a very simple explanation, and a genetic counsellor [GC] will be able to analyse your specific family history and give you accurate advice.