Podcasts
Retinal Realities
Retinal Realities is our new podcast platform which will be used to engage in discussions on a wide range of topics including:
• Interesting information on retinal degenerative conditions,
• Discussions on the latest and greatest assistive devices and apps which help the visually impaired,
• Conversations and stories covering science, tech, family, relationships, careers, humour, inspirational triumphs, social change and many more arears of interest.
We are not medical doctors, and you should always contact your physician or other qualified health care professional for any medical advice you need.
The views expressed in these podcasts do not reflect the views of Retina South Africa or any of our sponsors
EPISODE 29 – Redefining Independence – Caryl’s AMD Journey
In this powerful edition, host Claudette Medefindt sits down with Caryl Baum, a retired lawyer, mother, grandmother, and visionary advocate living with Age-Related Macular Degeneration (AMD).
Brought to you by Roche Products South Africa, this episode explores the emotional and practical realities of vision loss — from diagnosis to daily life.
Caryl shares her deeply personal journey, the impact of losing central vision, and the adaptive tools and mindset that help her thrive. From white canes and screen readers to scrapbooking and travel, she proves that vision loss doesn’t mean losing your purpose.
Whether you’re newly diagnosed, supporting a loved one, or simply curious about retinal health, this episode offers insight, hope, and practical advice. Tune in and be inspired by Caryl’s resilience, humour, and unwavering spirit.
🔗 Listen Here: https://youtu.be/HpvFLcEKTE8
📲 Subscribe to Retinal Realities on your favourite podcast platform
EPISODE 28 – Empowered to Educate – with Pieter Lindeque
In this inspiring episode of Retinal Realities, we sit down with Peter Lindeque, a passionate educator and founder of an online tutoring platform designed for learners with Stargardt’s disease and other visual impairments. Diagnosed at age 10, Peter’s path was shaped by uncertainty, resilience, and the unwavering support of his family. His story is a testament to the power of education—not just as a tool for learning, but as a weapon for transformation.
Peter shares how perseverance and purpose helped him overcome self-doubt and build a mission-driven platform rooted in patience, inclusivity, and lifelong learning. His philosophy as an educator reminds us that great teachers don’t just teach—they inspire growth, confidence, and possibility.
Tune in to discover how Pieter turned personal challenges into a movement for empowerment, and how his work continues to light the way for learners navigating life with low vision.
Listen on YouTube https://youtu.be/_Ya6240hRDw
EPISODE 27 – Women’s Month Spotlight – Strength in Motion – with Kathleen (Kat) Flanagan
In honour of Women’s Month in South Africa, today’s episode shines a light on a woman whose story embodies strength, spirit, and unstoppable determination.
Meet Kathleen Flanagan — or as her friends call her, Kat. At 39, she’s a powerhouse of athletic achievement and quiet courage. Diagnosed with Retinitis Pigmentosa at the age of five, Kat has never been able to see in the dark, yet she’s always seen possibility. From climbing trees and playing tennis with neighbours to earning a President’s Award and completing her BTech in fashion design, Kat’s journey has been anything but ordinary. She holds a degree in accounting, works in tax, and has danced ballroom routines on stage. But her true passion? Sport. She’s conquered marathons, ultra trail runs, and triathlons — including her first full Ironman in March this year, with another on the horizon.
This episode is a tribute to women like Kat — women who run, swim, lift, and rise. Women who redefine what’s possible. So let’s dive into her story and celebrate the power of women who dare to dream beyond sight.
EPISODE 26 – From Canvas to Counselling – Art, Loss, and Healing Through Psychology with Alexandra Makhlouf
EPISODE 25 – Finding Balance – Yoga, Vision Loss, and Inner Strength- with Claudette Medefindt
In this special Retinal Realities episode, we celebrate International Yoga Day with Claudette Medefindt — Retina South Africa’s Secretary and a dedicated yoga teacher. Claudette shares how yoga has helped her navigate life with vision loss, offering calm, strength, and balance.
Join us for an inspiring conversation about resilience, mindfulness, and simple practices you can start today.
Listen now and be inspired. Namaste!
Listen on YouTube https://youtu.be/k0fCLh6xFdM
EPISODE 24 – Rare Retinal Diseases – with Claudette Medefindt
This Rare Disease Day (28 Feb 2025), Retina South Africa highlights the challenges and breakthroughs in rare retinal diseases with expert Claudette Medefindt on our latest podcast episode! 🎙️
🔍 Did you know?
👁️ Rare retinal diseases affect fewer than 1 in 10,000 people.
🧬 Genetic testing is key to accurate diagnosis, with over 300 genes linked to these conditions.
💡 Exciting advancements like gene therapy & CRISPR bring hope for future treatments!
Listen on YouTube https://youtu.be/VFQvmfHNHK8
EPISODE 23 – Pedalling through challenges – with Joel Zeijlstra
In the latest episode of the Retinal Realities Podcast, Gavin and Karen sit down with Joel Zeijlstra, one of our incredible members who competed in the para category at the Dis-Chem Ride for Sight 2024. 🚴♂️✨
Joel opens up about the challenges he faced on his journey and what inspired him to take part in this amazing event. Don’t miss this inspiring conversation!
Listen on Spotify at https://spoti.fi/3ZClhVA
EPISODE 22 – World Retina Day – Love Your Eyes – Kids – with Claudette, Victoria and Lindiwe
This year’s theme is “Love Your Eyes – Kids: Focusing on Children,” and it’s a call to action we cannot ignore.
At Retina South Africa, we’ve observed some concerning trends affecting children’s eye health that could have lasting impacts on their futures. With the explosion of screen time from devices like smartphones, tablets, and computers, the benefits of technology are clear, but so are the risks.
Tune in as we explore these vital topics and offer actionable advice to safeguard our children’s vision. Your involvement can significantly impact the eye health of future generations. Don’t miss out!
Listen on Spotify at https://bit.ly/3Ua75jF
Thank you to Roche Products (Pty) Ltd for sponsoring this wonderful series of Retinal Realities podcasts.
Podcast Disclaimer: Any information, either audio or visual, contained on this Podcast is for informational purposes only and is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
We are not medical doctors, and you should always contact your physician or other qualified health care professional for any medical advice you need.
EPISODE 21 – Navigating Blindness with Grace – with Leanne Hunt
“Blind people have dreams as big as sighted people, and if they have the determination and courage to pursue those dreams, why stop them?” – Leanne Hunt
Join us in this episode of the Retinal Realities Podcast as we chat with Leanne Hunt, the author of What Every Blind Person Needs You to Know. Leanne shares how her experiences with vision loss inspired her to write this insightful handbook, this handbook is designed to show families, friends and colleagues of the visually impaired how to offer support without being patronising.
Leanne is living with Stargardt’s disease, a retinal condition that progressively leads to blindness. She has self-published several books, volunteered at various non-profit organizations, pursued a master’s degree, and written on a wide range of topics. Leanne’s accomplishments are a testament to her resilience and passion.
Leanne’s book is available on Amazon at https://www.amazon.com/What-Every-Blind-Person-Needs/dp/1535454504
Listen on Spotify at https://bit.ly/4dZ4bG8
EPISODE 20 – National Women’s Month – A Woman of Substance – with Mariza Jurgens
Welcome to today’s episode of our podcast! Retina South Africa is led by a management committee of eight members, including five passionate and strong women dedicated to transforming the lives of countless South Africans affected by retinal disorders. Among these inspiring women is Mariza Jurgens, the Deputy Chair of Retina South Africa, who lives with Cone Rod Dystrophy. Her life and achievements are a testament to her unwavering spirit. On National Women’s Day, August 9th, we applauded Mariza Jurgens for her recent appointment to the World Health Organisation’s advisory group on assistive technology. Mariza has been instrumental in advocating for the South African Revenue Services to make online tax filing accessible to visually impaired individuals. Listen to as we delve deeper into Mariza’s journey, her advocacy work, and the incredible impact she continues to make in the lives of many.
Listen on Spotify at https://bit.ly/4ckxJfH
EPISODE 19 – Inner Vision – A Yoga Journey beyond sight – with Claudette Medefindt
just a practice; it is a profound journey of self-discovery and healing. This journey is especially poignant for our guest, a remarkable yoga teacher who has faced the challenges of Retinitis Pigmentosa, a condition that has gradually taken her vision but never her spirit.
Through the art and discipline of yoga and mindfulness, she has found a sanctuary of peace, a source of unwavering strength, and a pathway to acceptance and joy.
Join us as we delve into her extraordinary journey, exploring how yoga has not only grounded her but also empowered her to embrace life with courage and
positivity.
Today, we celebrate the transformative power of yoga and the indomitable human spirit, exemplified by our guest Claudette Medefindt’s incredible story.
Listen on Spotify at https://bit.ly/4cBXetq
EPISODE 18 – “Green” Dreams – Bowling beyond limits – with Nicholas Dedekind
Join Retina South Africa for a day of fun and fundraising at our Bowls for Sight Day on the 28 July 2024.
For more information about the event, visit our events page at https://retinasa.org.za/events/bowls-for-sight/.
EPISODE 17 – Hope through Trials – A Stargardt’s Patient’s Perspective – with Melanie Nel
Listen on Spotify at https://bit.ly/4c2wDFV
EPISODE 16 – THROUGH THE LOOKING GLASS – with Hazel Sacharowitz
17 – 23 March is World Optometry Week, with the 23rd being World Optometry Day, the focus is on recognising the contributions of optometrists.
In today’s enlightening episode, we have the privilege of hosting Hazel Sacharowitz, a distinguished Optometrist from the Low Vision Care Centre.
Hazel has over 35 years of experience in the field of low vision including lecturing and training of the Optometry students at the University of Johannesburg. She is well known and respected in her field and has presented at numerous local and international conferences. She is a Fellow of the American Academy of Optometry and remains passionate about low vision.
Tune in, listen, and let’s explore the world of low vision together. Remember, you’re not alone—we’re here to support you!
Listen on Spotify at https://bit.ly/3IIvypW or wherever you listen to your podcasts.
EPISODE 15 – BREAKING THE BLIND BOUNDARIES – with Zaheeda Saloojee
Diagnosed with Retinitis Pigmentosa, Zaheeda Saloojee Jooma defied the odds by joining the Dis-Chem Ride for Sight just four weeks after taking up tandem cycling. With George De Goveia as her volunteer pilot, she faced fears, embraced trust, and proved that vision loss doesn’t limit courage.
Her story is a powerful call to break barriers and support inclusive para sports—reminding us that resilience and community can light the way forward.
Listen on Spotify https://bit.ly/3TnzUrx
EPISODE 14 – LIVING THE SWEET LIFE – WORLD DIABETES DAY- 14 November 2023 – with Gavin van Wyk
Today is World Diabetes Day and on the Retinal Realities Podcast, we have a special guest: Gavin van Wyk. Gavin is a SA Diabetes Advocate and a Retina SA Patient Advocate who has been living with Type 1 Diabetes for 35 years. He has experienced many challenges due to his diabetes, such as losing a lower limb and having low vision from Diabetic Retinopathy.
Join Karen and Claudette as they talk to Gavin about his inspiring story of coping with Diabetes and Vision Loss on this podcast. To find out more about Diabetic Retinopathy, you can read this article: https://sweetlife.org.za/what-is-retinopathy/
Listen on YouTube https://youtu.be/jw6FyE4L7dA
Listen on Spotify https://bit.ly/3QNSac3
EPISODE 13 – WORLD RETINA WEEEK- 24-30 September 2023 – with Claudette Medefindt & Sonya Lee Mahabeer
On the podcast today we have two dedicated women who are active members of Retina South Africa, Claudette Medefindt who has a 40-year history and Sonya Lee Mahabeer who has just recently brought her enthusiasm and energy to the organisation.
They each share their story on how they became involved in Retina South Africa and how Retina SA has helped them.
Listen to their stories on Spotify at https://bit.ly/3ZB26Kk
Listen on YouTube:
https://bit.ly/3SO680c
EPISODE 12 – NATIONAL WILLS WEEK – with Sonya Lee Mahabeer
On todays episode of the Retinal Realities Podcast we are joined by Sonya Lee Mahabeer who is an admitted attorney who is passionate about ethics, human rights, commercial law, including financial planning law, ESG and Legal Education. She is a member of Retina South Africa and is involved in the Youth and Governance Sub Committees.
EPISODE 11 – WOMEN WITH VISION – with Dr Farah Moti
EPISODE 10 – WITH A LITTLE HELP FROM MY FRIENDS – with Grant Medefindt
EPISODE 9 – CHECKMATE – with Luzuko Ngwevwla
Chess is a game of strategy and skill that requires a great deal of concentration and focus. For a visually impaired person, playing chess can be a challenge, but it is not impossible. One of the most inspiring examples of a visually impaired person playing chess is that of Luzuko Ngwevwla from Cape Town. He learned to play chess in Worcester after going blind. Despite his disability, he enjoys playing in chess tournaments in person and online via Skype.
Listen on Spotify https://bit.ly/43yJBXd
Listen on YouTube:
https://youtu.be/2C2BLho5Rm4
EPISODE 8 – BEYOND THE FINISH LINE !!! YOUTH EDITION – Hilton Langenhoven
EPISODE 7 – IF YOU CAN DREAM IT, YOU CAN ACHIEVE IT!!! YOUTH EDITION – Charlie Dyasi
“You are only disabled when you let yourself be disabled”, you are as abled as you are letting yourself and your mind be – Charlie Dyasi”
Meet Charlie Dyasi and his guide dog Billy, who are our guests on the Youth Edition podcast today. Charlie is a blind sound engineer, voice over artist, radio presenter and podcast host. He shows us how to overcome disability with determination and hard work. Charlie and Billy prove that nothing is impossible.
Listen on Spotify: https://bit.ly/3psiOxA
Listen on YouTube:
https://youtu.be/KWhaissBfYA
EPISODE 6 – INTRO INTO YOUTH EDITION – Manny Moodley & Sonya Lee Mahabeer
Retinal Realities Podcast: Youth Edition is a podcast by Retina South Africa that aims to empower, create awareness and support the youth with retinal conditions. It features interviews with young people, their families and medical professionals who share their experiences and insights. We invite the youth to interact with us on our social media platforms and suggest topics that interest them. “Empowering youth today for a brighter tomorrow”
Listen on Spotify https://bit.ly/44nW8O3
Listen on YouTube: https://youtu.be/LHQzFQTTCdA
EPISODE 5 – PAWS AT THE OFFICE – Mariza Jurgens and Dotty
Today we celebrate Bring your Dog to Work Day with Mariza Jurgens and her guide dog Dotty. Mariza is a blind accessibility advocate who works to improve information access for the disabled in South Africa. She has Cone Rod Dystrophy, a visual impairment that affects her vision. Dotty helps her with tasks such as crossing the street, avoiding obstacles and finding her way around. Dotty is trained by Guide Dogs UK and responds to Mariza’s commands and alerts. Let’s appreciate these amazing animals and their owners!
Listen on Spotify https://bit.ly/3Pvnf5o
Listen on YouTube
https://youtu.be/4hccacnHeXU
EPISODE 4 – OPEN THE LID AND CLIMB OUT – Alani Ferreira
Happy Youth Day!
This week on the Retinal Realities podcast, we have Alani Ferreira, a two-time Paralympic swimmer who has Stargardts. She is also a BCom graduate and works in Agriculture. She has a guide dog named Gatsby. She tells us how she overcame her disability and achieved her goals. She says “Don’t let your disability limit you”, people are going to try and put you into a box, but the box has a lid, open the lid and climb out.
Listen on Spotify https://bit.ly/3JDIM8v
Listen on YouTube
https://youtu.be/LHQzFQTTCdA
EPISODE 3 – WHERE THERE IS A WILL, THERE IS A WAVE – Michele McFarlane – Parasurfer
Our guest today on World Ocean Day 8 June 2023 is Michele Mc Farlane – Parasurfer.
In 2005, Michele was diagnosed with 40 degrees vision due to the deteriorating eye disease Retinitis Pigmentosa.
Two years ago, Michele did an adaptive surf clinic with the Roxy Davis Foundation and with her signature drive entered her first local competition the following year. In December 2022 Michele represented South Africa in the World Parasurfing Championships.
Listen on Spotify https://bit.ly/3P1L4l7
Listen on YouTube
https://bit.ly/40J2bMv
EPISODE 2 – TRIUMPHANT TRIATHLETE – Linsay Engelbrecht
Our guest today on World Bicycle Day 3 June 2023 is Paratriathlete Linsay Engelbrecht.
Linsay was diagnosed with Stargardts Disease – a genetic progressive eye disorder at the age of 23, but this hasn’t stopped her from achieving her goals.
Listen to her story on Spotify at https://bit.ly/45Njo9F
Listen on YouTube
https://bit.ly/46nWiW0
EPISODE 1 – SHARING YOUR STORY – Claudette Medefindt – Head of Science
PROMO FOR RETINAL REALITIES – Karen Denton
In this promo of the Retinal Realities Podcast Karen Denton Head of Advocacy and Awareness shares what listeners can expect from the Retinal Realities Podcast.https://bit.ly/47Hcgvo
Platinum Gold Radio Podcasts
Listen to the series of past chats with Claudette Medefindt (Head of Science) and Karen Denton (Head of Advocacy and Education) about eye-care, eyesight preservation, eyesight management and daily operations with impaired vision.
For more podcasts goto their website address www.platinumgoldradio.com
